Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Update from me: Mestonin made a huge improvement

Reply
 
Thread Tools Display Modes
Old 06-28-2012, 09:26 AM #1
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
  
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default Update from me: Mestonin made a huge improvement
Hi friends,
For a few months now I've been posting back and forth between the MS board and the MG (myasthenia gravis) board. I was undiagnosed but working through all the neurology stuff.

Yesterday I saw my new neruologist, who specializes in myasthenia and also in neuromuscular disorders.

Long story short, he prescribed me a trial dose of Mestonin (MG medication), and after taking it I immediately felt much better. Amazing!

He also ordered more tests, ones that hadn't been done yet. Including a facial EMG (sounds like some awful spa service), blood work, and possibly a muscle biopsy.

So it sounds like for the time being I'll continue to hang out on the MG board, but wanted to drop a line back here to say hi.
__________________
.................................................. ...........
37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
.................................................. .............
restorativepose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (06-28-2012), Dejibo (06-28-2012), dmplaura (06-28-2012), jprinz99 (06-28-2012), Judy2 (06-28-2012), Kitty (06-28-2012), Mariel (06-28-2012), nemsmom (06-28-2012), SallyC (06-28-2012)
Old 06-28-2012, 01:17 PM #2
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
  
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default
Hope the new med continues to help! Maybe this will help give you some answers.
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (06-28-2012), Mariel (06-28-2012), restorativepose (06-28-2012)
Old 06-28-2012, 09:49 PM #3
Mariel Mariel is offline
Member
  
Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Default
Hope this is your answer and that it works.
Mariel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Old 06-29-2012, 12:07 PM #4
jprinz99 jprinz99 is offline
Senior Member
  
Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
15 yr Member
jprinz99 jprinz99 is offline
Senior Member
 
Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
15 yr Member
Default
I hope this an answer to getting you feeling better!
__________________
Jane

Cleverly disguised as a responsible adult!
jprinz99 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Reply

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Mestonin and Tensilon teresakoch Myasthenia Gravis 5 06-17-2010 10:59 AM
Mestonin brand versus generic? whirlwind123 Myasthenia Gravis 5 08-04-2009 11:47 PM
Paris Neurology World 2009 Conf. Tandem bike shows huge improvement ronnie Parkinson's Disease 0 07-21-2009 11:15 PM
B 12 results, Huge improvement. too much? Sydney Vitamins, Nutrients, Herbs and Supplements 17 02-07-2007 04:29 PM
B 12 results, Huge improvement. too much? Sydney Vitamins, Nutrients, Herbs and Supplements 1 01-11-2007 04:56 PM


All times are GMT -5. The time now is 05:30 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home