I Came Back

azoyizes · 07-27-2012, 05:03 PM

Hello all. I stopped posting on these boards a year ago. Now, I'm back.

In this post, I wanted to concentrate on myself and tell you what's been going on.

Mid 2011, my neurologist here in Salem sent me to an MS specialist in Charlottesville, VA. I went to him twice. At the end of the second visit, he told me that he doesn't think I have MS. I was diagnosed in early 1990. Yet, he couldn't tell me what I had.

A few months later, my neuro sent me to another MS spec in North Carolina. This was a three hour drive both ways. He said I have white spots that aren't in the usual places. He also told me that I had had a stroke(that's not been mentioned on any of the MRI's in the past). I was to have MRI scans of my brain and cervical spine, have them copied to a CD or DVD, which I did, and then bring it back for him to see again. So, I had done what he requested.

Three hour drive; doctor with us in exam room for maybe 15 minutes; doctor gone.

I go back to my neuro and tell him all that had happened. He said that he can't put me back on Tysabri because I had tested positive for the virus and because the two specialists didn't think I have MS. I asked him what I should do. He said I should find my own neurologist.

I found a neuro (Dr. Burch) who is supposed to be very good. He has a large patient list and can't see me until late October.

I called my neuro here in Salem and was told that Dr. Sherman had forwarded all of my records to Dr. Burch, and that I was no longer his patient. Is that even legal? To leave me without a neurologist. I asked about my Trazodone, which I take for sleep. His nurse said "he may renew it". Well, he did with one refill. I can always get it from my PCP.

My PCP, Dr. Leong, told me that he believes I have MS and he won't stop believing until someone proves what I have that's not MS. Bless his heart.

Meanwhile, my legs and arms are getting weaker. I have tremors and now twitches. I'm having a terrible time with my memory, becoming almost a danger to myself and others. Monty (my service dog) still helps me when I lose my balance. He's not able to help me off the floor because my legs are too weak. He can get DH Arnie and bring him back to me so that he can help me up off the floor.

That's about it. It's good to be back.

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
Back after a set back, a lesson learned about risk factors.	JB63	Peripheral Neuropathy	4	11-17-2011 08:48 PM
3 blown veins 2 days of back to back mris 487 pictures of my brain....	legzzalot	The Stumble Inn	5	06-08-2011 11:29 AM
neck, upper back and mid back	bn6wheels2	New Member Introductions	6	03-26-2008 08:50 AM

Site Navigation

NeuroTalk Online Support Groups

I Came Back

NeuroTalk Forums