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Old 08-15-2012, 09:29 AM #11
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try not to kill her...
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Old 08-15-2012, 03:00 PM #12
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They had another fan of "the view" Today. But I was the first patient there today and mentioned the nurses that I hate "The view" and It was too loud yesterday. So the nurses talk to the person was watching Into letting them turn down some.

I watched "Inspector Lewis" On my iPad and ended up taking a little nap. It helped that I had headphones so that Blocked out the rest of the noise. Plus that way the noise of my iPad wouldn't bother anyone else. But I'm Polite like that.

Good thing I asked about the steroid taper Today, because I finish the IV On Friday. It would be good to have a bottle of Oral prednisone on Saturday, So I just made sure to call my doctor for that. I Would have been very unhappy over the weekend if I didn't have the taper.
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Old 08-15-2012, 10:43 PM #13
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Doesn't seem to be working. I'm having a lot of problems getting my fingers to control my computer mouse, so much That I order a Trackpad That is going to be delivered tomorrow to use with my computer to see if that'll work better than not having a mouse.

Otherwise I'll be doing everything totally from my iPad and my Kindle Fire.The iPad the only tablet I can use with dictation software.

This getting really really really really annoying


Edit

I'm switching over completely to my iPad. I can't use my computer mouse I just washed my hair and I had a hard time doing that. Combing my hair was an adventure. Kept dropping the comb and brush Almost broke the hand mirror. Nearly killed myself of the hairdryer but almost hitting myself in the head.
L
I thought those stupid steroids were going to help. This isnt just a numbness problem this is a motor problem. Should the steroids helped by now?

I'm not just worried about never being able to crochet or drive again. Start to think I got bigger problems going on


My index finger and middle finger I'm in left hand feel like they're twisted, this is by themselves, the also feel like they've been twisted together, but when I look at them they're nowhere near each other they're flat like normal as they should be. They just feel like they've been tied together

Am I just not being patient enough?
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Last edited by Erin524; 08-15-2012 at 11:12 PM.
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Old 08-16-2012, 10:34 AM #14
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Sometimes it's weeks after you stop the steroids, before you notice improvement. Please give it more time..

So sorry for you nasty symptoms and I hope it gets better for you soon.
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Old 08-16-2012, 10:41 AM #15
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It can take a while for either the roids to start working or the flare to start subsiding so don't give up hope yet.
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Old 08-17-2012, 11:00 PM #16
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My hand hurts really bad tonight I think it's from the IV

It feels like I sprained my left hand. And all the stress of my mom

All I want to do is drink water eat and figure out how to cool off. I am so hot right now I'm trying to drink more water than doing anything else. X I'm going to bed in a little while.


Could my hand be hurting because they collapsed a vein accidentally?. I've never had a collapsed vein before

It's the hand that's the most numb
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Old 08-18-2012, 07:42 PM #17
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when that happens to me (often) i drink 1 or 2 bottles of Boost. i actually like it.
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Old 08-19-2012, 08:34 AM #18
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hang in there dear, sounds like this was tough ordeal for you (and for your body).

When all else fails just keep saying to yourself "In with the good air, out with the bad..." Sometimes it is all we can do till the Monster calms down a bit.
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Old 08-19-2012, 11:29 AM #19
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Quote:
Originally Posted by jprinz99 View Post
When all else fails just keep saying to yourself "In with the good air, out with the bad..." Sometimes it is all we can do till the Monster calms down a bit.

My favorite saying...
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