FAQ/Help |
Calendar |
Search |
Today's Posts |
|
![]() |
#1 | |||
|
||||
Member
|
I believe I had an elevated IgG index in my spinal tap paired with no O-bands. So that elevation is considered a marker for MS.
I'm so happy the MS specialist said there was no MS. Yeah!!!!!! ![]() ![]() So do they have any idea what is going on????? What symptoms were you having that made you get an MRI in the first place?
__________________
On Tysabri and love it. . |
|||
![]() |
![]() |
![]() |
#2 | ||
|
|||
Junior Member
|
..Thanks you guys.
Yes all my levels in CSF were in "Normal range" ( i thought they were perfect} ![]() What started this Whole Journey was i was having this Slight...and i mean slight on and off weird feeling in my left side of my Jaw area ...like a slight Numbness...some days i would notice it and some i did not. When i told my general doc she said "You Gotta go see a Neuro doc for that.!! .. I was like "ok" ...Cool.. I thought maybe i will get an MRI out of the deal..Cause i have Always wanted to see My Brain..!! at this Neuro doc - I thought i would Lay it all on the line (since i was there) So i told him How i would get on and off periods of "extreme fatigue" and weakness and Pain....(not all at the same time) !! ..I told him i thought it was from my thyroid or Hashimoto's or Hormones...etc. He said maybe...but he wanted me to get an MRI to rule out MS. ![]() I freaked out...I Never thought i fit into MS symptoms...! But I played along...I was still excited to get the MRI and See MY brain.!! MRI comes back...says i have Chronic deep white matter ischemic disease ..and also two highlighted areas seen....! I go for my follow up and this doc says...you gotta get a spinal tap. ![]() I freaked Out.!! No way - this doc says i have a demylinating disease. I asked if it could be "MS" and he shook his head yes. But he said "thats why you need to get the spinal tap....to help rule it Out.! i Finally agreed to the spinal...took the results and All my reports to a Different Doc. (different hospital) this New doc is Medical director - Head of Neurology at the MS clinic. He did a very intense testing...( head to toe) etc. (actually there were 5 lesions not two - like the report stated ) am here i am.... he says Nothing points to MS...( well he talked to me to explain everything - he went over a lot with me...) Very kind. hope this helps...to understand.. |
||
![]() |
![]() |
![]() |
#3 | |||
|
||||
In Remembrance
|
Thanks for the recap, Carbreezy.
![]() What is causing your brain lesions? What does your specialist Neuro think? I hope whatever is wrong will be something curable and your symptoms will all go away.. ![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (09-08-2012) |
![]() |
#4 | |||
|
||||
Grand Magnate
|
congrats on the no MS. what great news.
i hope the future looks bright for you.
__________________
Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
|||
![]() |
![]() |
![]() |
#5 | |||
|
||||
Member
|
Honestly after my first LP, no one ever told me anything about it other than I didnt have any Obands. After my second, same thing, except this time I did have Obands.
__________________
Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
|||
![]() |
![]() |
"Thanks for this!" says: | carbreezy (09-10-2012) |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
A Definition Question- re meaning of "Full Body RSD" and "Internal RSD" ?? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Can the antibiotics "Ceftin" or "Flagyl" cause a temporary spike in Small Fiber pain? | Peripheral Neuropathy | |||
So which "existing" diabetes drug turns the PGC-1 Alpha "Master Switch" back on? | Parkinson's Disease | |||
Actor Patrick Swayze, star of "Dirty Dancing" and "Ghost," | The Stumble Inn | |||
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" | Parkinson's Disease |