Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-12-2012, 10:04 PM #1
KittyLady's Avatar
KittyLady KittyLady is offline
Member
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default What can I do

Today I got a huge blow to my great family support theory. My dh and I were talking about my MS, and how my neuro wants me to get that jc virus test. I told dh why should I Im never going to take Tysabri. So whats the point. DH tells me that maybe one day I'll change my mind, and I stood firm and said NO. He then starts arguing about what happens if/when the copaxone isnt/doesnt work anymore, then what you going to do? Become a stiff two-by-four, unable to feed yourself or hold the grandkids? I told him lots of MSers dont do dmd's. Its not mandatory! I can survive without them. I'd do symptom management. Then he flew off into a raging rant about if I dont do what the neuro tells me to do, the doc could very well tell me he wont care for me and then what do I do. This doc continues to see you even after we lost our insurance and if dh can get insurance theres nothing saying that I can be covered under it. He continued in some rant about medicare and blah blah blah. I tuned him out, I was angry with him. How dare he tell me to just bend over and do whatever the doc tells me too. Dang it, its MY body and MY healthcare, nobody elses! My own husband wont stand by my side, who will?!?! I have 3 kids, and only 1 of them said they would stand by whatever decisions I make. Out of 4 people, only 1. How pathetic am I?? My oldest child doesnt even want to hear about how Im doing. She's currently not speaking to me because appearantly I told her too much info I cant work anymore, Im home alone all night, dh works nights, and basically home alone all day, while dh sleeps. Im going crazy here, and just want to call it quits.... on everything!!
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (09-13-2012), Mariel (09-15-2012), NurseNancy (09-14-2012), offinthedistance (09-15-2012), yeti (09-19-2012)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 03:15 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.