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Today I got a huge blow to my great family support theory. My dh and I were talking about my MS, and how my neuro wants me to get that jc virus test. I told dh why should I Im never going to take Tysabri. So whats the point. DH tells me that maybe one day I'll change my mind, and I stood firm and said NO. He then starts arguing about what happens if/when the copaxone isnt/doesnt work anymore, then what you going to do? Become a stiff two-by-four, unable to feed yourself or hold the grandkids? I told him lots of MSers dont do dmd's. Its not mandatory! I can survive without them. I'd do symptom management. Then he flew off into a raging rant about if I dont do what the neuro tells me to do, the doc could very well tell me he wont care for me and then what do I do. This doc continues to see you even after we lost our insurance and if dh can get insurance theres nothing saying that I can be covered under it. He continued in some rant about medicare and blah blah blah. I tuned him out, I was angry with him. How dare he tell me to just bend over and do whatever the doc tells me too. Dang it, its MY body and MY healthcare, nobody elses! My own husband wont stand by my side, who will?!?! I have 3 kids, and only 1 of them said they would stand by whatever decisions I make. Out of 4 people, only 1. How pathetic am I?? My oldest child doesnt even want to hear about how Im doing. She's currently not speaking to me because appearantly I told her too much info
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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"Thanks for this!" says: | ANNagain (09-13-2012), Mariel (09-15-2012), NurseNancy (09-14-2012), offinthedistance (09-15-2012), yeti (09-19-2012) |
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