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#1 | |||
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Magnate
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Guess so! Was nearly a year ago with the ON attack, now this round.
So this is day 2 oral steroids. Been through 5 on IV already. The good news is, not spastic! Apparently I'm just getting bad leg cramps. I do, however, have some balance stuff going on my left side. Seems to be sensory more than else. Thankfully, neuro knew right away what I meant when I described the leg dropping/buckling feeling. Still dizzy as heck and oral steroids give me wicked headaches! Overall though, the news, even as a relapse, isn't so bad.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#2 | |||
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Elder
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Aww sorry to hear this dear...
![]() ![]() At least your doc gives you something to take the nasty sxs away...mine only has prescribed IVSM once in almost 4 years...I don't even call anymore when something's up. Hope you feel better soon...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#3 | |||
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Wise Elder
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![]() ![]() ![]() Hang in there, Laura and let us know how you are doing. ![]() |
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#4 | |||
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Magnate
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Quote:
![]() Decided after talking with neuro to taper off Topiramate as well. It's not doing what it should be doing for me (migraine prevention) and the side effects are worse than the benefits. Not a good medication for me either. Sigh... ![]() For now, let's get off what I don't need, get through these roids, and get back to work. Oh, and if relapse wasn't fun enough on its own, I get to go back to the doctor to see if I have a UTI. Weeeee! Fun never stops! ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#5 | |||
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In Remembrance
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Sheesh Laura, enough is enough. Please feel better soon..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#6 | ||
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New Member
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I cant decide if I should go to the hospital or not. I need some advice...
Im having a major flare up. The left side of my face went numb a month ago, and a week ago, I began experiencing Optic neuritis in my left eye. Now I feel like im getting a cold, and 2 days ago I began experiencing Vertigo. I feel super weak and feel like im gonna drop to the floor every 10 min. My doctor seems too busy to get back to me, he did order an MRI last week and Ive taken 5 days of oral steroids, but things are just getting worse. I want to avoid any permanent damage to my eye. Any advice? Thanks |
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"Thanks for this!" says: | SallyC (10-06-2012) |
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#7 | |||
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Magnate
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Quote:
With that said, truth or not, vision is one element you don't want to mess with. You certainly don't want to permanently damage your eye! Things can get worse before they get better on steroids (from my experience), but where the eye's involved, I say it's best to contact your doctor asap for a follow up.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (10-06-2012) |
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#8 | ||
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New Member
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I have been on Topirimate (Topamax) for about 5 years. My old neuro told me it was for pain and headaches. New neuro (I really like her) said that she won't be able to tell if my cognitive function is from my MS or the Topamax until I come off of it! I was taking 200mg/day. She is a headache specialist also and said there are much better things than that out there.
I had some migraines but never went to the Dr. for them, I don't even know why he used this med on me. I remember lookin it up online and people call it Dopeamax because it makes you so stupid! Hopefully my brain will work better too!! ![]() |
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#9 | |||
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Magnate
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Quote:
I'm being sent to more specialists now. Rheumy, ophthalmologist, neurologist. Basically, my doctors don't know what's up with me, again. Back in limbo it feels like. Mid-August I developed literally overnight these dime to quarter sized red bumps on both my shins. I only had a couple at the time on either leg. I figured they were a result of the Topiramate, as when I was starting to taper off, these bumps started to also subside. Wishful thinking. Fast forward to just over a week ago. October 5 to be exact. Woke, didn't notice a thing wrong. By noon, I had to descend/ascend the stairs to retrieve a package from UPS. I noticed then my legs from knees to ankles were hurting. Like when you've walked a lot in ill fitting shoes. By 5 pm, hubby gets in from work, and I check my legs which are now in dreadful pain. Fresh bumps, only a lot more than previously, and they're super inflamed. Same thing - red, no 'point' in the centre, hard lump under skin, tender to touch. I'd shown the older ones to doctors previously who had NO idea what these were. But here I had a case that was starting up/fresh to show the doctor. Who was able to look and diagnose "Erythema Nodosum". I then went to my GP, who looked them over and saw that my ankle (left) was swollen badly. When I read about E.N., I wasn't at all surprised to see it's associated with various conditions, but notably Bechet's Syndrome (Disease) which I've long suspected I may have, or something very similar, as I have the other hallmarks of this. So... now we're investigating arthritis and other possible conditions that may be present. Ugh.. fun! ![]() Considering I was on steroids for the MS relapse, one would think that they would help reduce the inflammation for the legs, but nope. Now I am left wondering what is MS, what is mystery condition X? Are my symptoms attributed to MS alone? My headache/migraine pattern is certainly more indicative of Bechets. Argh!!!
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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