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Old 09-19-2012, 08:47 AM #1
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Default Annual Relapse?

Guess so! Was nearly a year ago with the ON attack, now this round.

So this is day 2 oral steroids. Been through 5 on IV already. The good news is, not spastic! Apparently I'm just getting bad leg cramps.

I do, however, have some balance stuff going on my left side. Seems to be sensory more than else. Thankfully, neuro knew right away what I meant when I described the leg dropping/buckling feeling.

Still dizzy as heck and oral steroids give me wicked headaches! Overall though, the news, even as a relapse, isn't so bad.
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2004 to present - Trigeminal Neuralgia
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05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 09-19-2012, 07:10 PM #2
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Aww sorry to hear this dear...

At least your doc gives you something to take the nasty sxs away...mine only has prescribed IVSM once in almost 4 years...I don't even call anymore when something's up.

Hope you feel better soon...
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Old 09-19-2012, 07:16 PM #3
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I'm sorry you are having your annual flare. I hope you start to feel better soon. And, I get the legs dropping/buckling thing. It's a weird symptom and seems to be sensory only.

Hang in there, Laura and let us know how you are doing.
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Old 09-19-2012, 09:56 PM #4
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Quote:
Originally Posted by tkrik View Post
I get the legs dropping/buckling thing. It's a weird symptom and seems to be sensory only.
Thank you for this. Nice to hear I'm not alone! Yes it's truly weird! It started off slow (affecting me only it seemed at times when I'd be standing stationary doing something) and then progressed into affecting me while I'd be out walking - that's when I realized I needed to be seen (plus I had other sxs cropping up). Did you find yours also came along with dizziness/vertigo at all? That's ultimately (the dizzy/vertigo) what has me off work now, plus the side effects of the steroids (which are tragic, my body hates the junk, if I could avoid taking it I sure would).

Decided after talking with neuro to taper off Topiramate as well. It's not doing what it should be doing for me (migraine prevention) and the side effects are worse than the benefits. Not a good medication for me either. Sigh... Another failure in the books! One day I'll find something to control the migraines, I know it!

For now, let's get off what I don't need, get through these roids, and get back to work. Oh, and if relapse wasn't fun enough on its own, I get to go back to the doctor to see if I have a UTI. Weeeee! Fun never stops!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 09-20-2012, 12:37 PM #5
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Sheesh Laura, enough is enough. Please feel better soon..
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Old 10-02-2012, 07:06 PM #6
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Tongue Vertigo

I cant decide if I should go to the hospital or not. I need some advice...
Im having a major flare up. The left side of my face went numb a month ago, and a week ago, I began experiencing Optic neuritis in my left eye. Now I feel like im getting a cold, and 2 days ago I began experiencing Vertigo. I feel super weak and feel like im gonna drop to the floor every 10 min.
My doctor seems too busy to get back to me, he did order an MRI last week and Ive taken 5 days of oral steroids, but things are just getting worse. I want to avoid any permanent damage to my eye. Any advice?
Thanks
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Old 10-05-2012, 09:53 PM #7
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Quote:
Originally Posted by thedelacruz5 View Post
I cant decide if I should go to the hospital or not. I need some advice...
Im having a major flare up. The left side of my face went numb a month ago, and a week ago, I began experiencing Optic neuritis in my left eye. Now I feel like im getting a cold, and 2 days ago I began experiencing Vertigo. I feel super weak and feel like im gonna drop to the floor every 10 min.
My doctor seems too busy to get back to me, he did order an MRI last week and Ive taken 5 days of oral steroids, but things are just getting worse. I want to avoid any permanent damage to my eye. Any advice?
Thanks
I'm definitely not a professional, but if memory serves me correctly, the IV steroids seem to work best for Optic Neuritis (versus oral).

With that said, truth or not, vision is one element you don't want to mess with. You certainly don't want to permanently damage your eye! Things can get worse before they get better on steroids (from my experience), but where the eye's involved, I say it's best to contact your doctor asap for a follow up.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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