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Old 01-07-2013, 08:49 PM #11
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Sorry you're feeling bad from the med...I had a similar reaction to Ampyra-so nauseous. Neuro said "that's not one of the side effects." ask me if I care--I discontinued it against his advice.
Hope your walking is back soon-let us know how you're doing
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Old 02-07-2013, 01:46 PM #12
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Anyone else on this med?
This is from the NMSS:
"Of two different doses tested during the TEMSO trial (7 mg and 14 mg), the higher dose also slowed progression of disability. Both doses also had a favorable effect on several MRI measures, including a smaller increase in total lesion volume and fewer new and actives lesions compared with placebo."
"Note: Aubagio remains in the blood for an average of eight months after a person stops taking the medication, but may remain in the blood for up to two years after the last dose. If necessary, for medical reasons or because a woman has become pregnant or a woman or man wishes to conceive a child, the medication can be eliminated from the body in 11 days with the use of cholestyramine or active charcoal."

I have been waiting on BG12 for what seems like forever!! However, my neuro doesn't want me to continue waiting as I am having increase visual issues (decrease visual field, and continued RAPD) So, he want me to start the Aubagio and change to the BG12 when it comes out.
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Old 10-02-2015, 08:07 PM #13
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I've been on Gilenya for about 8-9 months or so and having a pretty bad relapse now. So the neuro wanted me to stop immediately especially since my WBC was low at 2.0. Something in my blood tests also showed lack of protein or low protein but I have a lot of protein in my diet so I'm not sure what that would be caused by. I don't have the copies of the blood tests yet but the neuro had them faxed to him from the PCP. I go for an MRI on the 13th then he might want me to have steroids. He is suggesting Aubagio as the next step but I don't know what to think.

I get lower back and tailbone pain, a dull ache, then my legs start to give out. I'm still too stubborn to use my cane at work which I really need to do. I called off last Sunday because of the walking problems.
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Old 10-08-2015, 05:55 PM #14
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So sorry Wiz. Hope Aubagio works for you, if you decide to take it.

Feel better soon.


Quote:
Originally Posted by ewizabeth View Post
I've been on Gilenya for about 8-9 months or so and having a pretty bad relapse now. So the neuro wanted me to stop immediately especially since my WBC was low at 2.0. Something in my blood tests also showed lack of protein or low protein but I have a lot of protein in my diet so I'm not sure what that would be caused by. I don't have the copies of the blood tests yet but the neuro had them faxed to him from the PCP. I go for an MRI on the 13th then he might want me to have steroids. He is suggesting Aubagio as the next step but I don't know what to think.

I get lower back and tailbone pain, a dull ache, then my legs start to give out. I'm still too stubborn to use my cane at work which I really need to do. I called off last Sunday because of the walking problems.
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Old 10-29-2015, 07:54 AM #15
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Default Aubagio 3 years now

I have been on Aubagio for 3 years now with no new lesions on MRI's and no terrible flare ups. I think my symptoms have gotten worse and there are new ones but my doctor says I am stable.

There have been no bad side effects either. But I can't tell if something is a side effect or just MS so I'm not sure. It's worth a try, I think.
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