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Old 10-02-2015, 08:07 PM #13
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ewizabeth ewizabeth is offline
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Join Date: Sep 2006
Location: northern Illinois
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ewizabeth ewizabeth is offline
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ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
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I've been on Gilenya for about 8-9 months or so and having a pretty bad relapse now. So the neuro wanted me to stop immediately especially since my WBC was low at 2.0. Something in my blood tests also showed lack of protein or low protein but I have a lot of protein in my diet so I'm not sure what that would be caused by. I don't have the copies of the blood tests yet but the neuro had them faxed to him from the PCP. I go for an MRI on the 13th then he might want me to have steroids. He is suggesting Aubagio as the next step but I don't know what to think.

I get lower back and tailbone pain, a dull ache, then my legs start to give out. I'm still too stubborn to use my cane at work which I really need to do. I called off last Sunday because of the walking problems.
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