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#1 | |||
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Grand Magnate
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BG-12 and then Aubegio has FDA approval. Waiting to hear from those who try either.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#2 | |||
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Member
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I have a neuro appt in November and I am going to ask about the bg12
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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"Thanks for this!" says: | AynaDee (02-08-2013) |
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#3 | ||
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Junior Member
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I didn't think the BG-12 had been approved yet. The Aubagio was just approved and I think they said October for commercial release.
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#4 | |||
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Grand Magnate
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AO - Atlas Orthopedic: Anyone hear of or doing that? This Interests me. (CSF interests me)
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#5 | |||
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Member
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It took me about 2 months to finally get my starter kit for Aubagio. I've not taken it for two days. The first night gave me horrible diarrhea, prickly feet, feelings of nausea and it has made me fall because I am having a very hard time with walking now. I took my second dose and am waiting to see if my body can tolerate it better tonight. We shall see...
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#6 | |||
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In Remembrance
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Doc, do you take 7mg or 14mg? Maybe the lesser doseage may lessen the sides?
I read about it and personally, don't like the possible unhealthy sides. ![]() All that being said, I hope it works for you with minimal side effects. ![]() ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#7 | |||
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Member
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Hi Sally,
I'm taking the 14. My neuro wanted 14 based on the comparisons but I really cant remember him saying 14 has a better outcome than 7. I thought he said they are about the same. I'm guessing he must have said 14 is better than 7 but really cant remember what he said. 7 is a good idea. I've had more prickly hands and feet, numb right hand all night and nausea. Walking has been harder and I'm super cranky. |
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#8 | |||
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In Remembrance
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For some people More is not always better.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#10 | |||
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Member
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OK, I got my liver test back after only take it for about 7 days and it was much higher than the baseline reading so I stopped Aubagio this weekend. I still cant walk and my neuro will be upset with me for stopping, because as he said, "It cant help you if you don't take it." My opinion is "It was not helping me when I was talking it, in fact it made me worse" so I hope to stop being nauseated soon, very soon, and I hope to get my walking back to the way it was. I know my neuro wants the best for me but I know it is important to listen to the patient and don't tell the patient "that med can't do that!" when I'm the one living it and I know my body... Anyway, I am happy to be off.
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