You'ld think I want them to diagnose me with MS. I'm not fishing for an LP but I match so much. I am at the end of my rope wanting an answer.

OK, we have talked fatique,but is it just being tired or having to sleep? It seems like the more I sleep the more I have to sleep. I plan my days so I can sleep 3-4 hours in the afternoon and still sleep all night. I do have an appointment with my neurologist in a couple weeks.

It's not just being tired, it's that crushing fatigue that stops you from functioning, and makes you too exhausted to even roll over in bed.

It isn't necessarily the need to sleep, but the need to stop, regroup, and revive. It's when you brain says 'enough' and the messages just don't get through, it all seems too hard, too complicated, real life is too far away, nothing makes sense, tears are close and reallity is something you only wish for. When it truly hits me, I feel like I am in a hole and there is no way out.

Of course, I do get out of it, and I get back on top of this stupid disease. There is a difference between being tired and MS fatigue. It's kinda like someone letting the air out of your tires, and clubbing you with a baseball bat all at once.

Sure, I get tired like everyone else, but when my MS is active, fatigue is a whole different monster.

Lyn

*winner winner* I just feel paralyzed. I won't make a sandwich because it's too much effort. I'm afraid this is rolling over to working out, fencing. Are we allowed to just freaking give up? It would be so much easier.

No, never give up hope SD.

What would you do with a DX of MS if you got it? You seem to have enough on your plate and you most likely do have MS, but there is no cure and not even a really effective Med.

Have your Doc treat your symptoms with the best ammunition he has, to relieve them as well as can be done. I've been officially DXed for 40 years, and that's all I can do.

I think it would be the satisfaction of knowing and plan accordingly. It's a pain when my family doesn't know what it's like. I agree with you, hell, just rolling over in bed is a chore. Then comes the unsteady gait (weaving up and down the hall bouncing off of them. Trouble balancing on a small step wringing the laundry in. I have already done work-arounds of setting a folding chair in front of the machines so I can load and unload them. When I take a basket upstairs I set it up a couple of steps, climb, then move it up again

I'm registered for two tournaments, one here in November and a national qualifyer in December in Milwaukee (gee,that sounds fun) I need to practice or I'm going to get stomped and lose my national ranking.

I just don't feel like I am pulling my weight which leads to the "what am I trying to get better?" It's nice to talk to folks who get it.

I read something the other day about MS fatigue. The author related it to our batteries dying down, only our battery charge is malfunctioning and doesn't fully charge our batteries. It was a pretty good analogy.

For me, it's the need to just stop what I am doing and rest. There is no other option. You just can't fight through it. Some times it's mental fatigue from too much stimulation and I just need to have some quiet time. Other times, it's physical fatigue where just taking a shower is so physically exhausting. And, other times it's a combination of both of them. I do nap daily and take frequent "breaks" from what ever I am doing. I often feel as if nothing ever fully gets done. Like 1/2 the dishes loaded in the dishwasher or 1/2 the laundry or 1/2 of the vacuuming, etc.

I used to fight it like the devil but after learning the hard way, I just give in to it and rest. Trust me, it has taken me 5 years to finally get it through my head. haha If you overdo it, you will pay for it later in the day, the next day, and/or even the next several days.

At your next appointment, discuss this with your dr. It may be MS or it may be something else. You have had a lot of circulatory things happen and it could be circulatory in nature. Hang in there and know that most of us MSers totally understand the fatigue you are experiencing.

I haven't been diagnosed w MS but I had a recent crani for an aneurysm repair on my frontal lobe. All the fatigue symptoms I've read here sound like mine. I'm 9 months post surgery and seem to be getting worse w this instead of better. It is very frustrating and leads to deep depression for which I was already being treated for before surgery. I don't hv any answers for you but do somewhat understand what ur going thru

Hi Lisa

Nice to meet you

Tell me more about you, and your situation. Do you have MS stuff as well, or are your problems mainly to do with your aneurysm? Either way, I would be happy to discuss this with you through a private message if there is any way I can help.

They are both massive conditions, and can lead to depresion, disability and lots of other stuff. Please feel free to contact me if you would like to talk.

Hugs

Lyn