advertisement
Reply
 
Thread Tools Display Modes
Old 10-02-2012, 07:09 PM #1
thedelacruz5 thedelacruz5 is offline
New Member
 
Join Date: Oct 2012
Location: CA
Posts: 5
10 yr Member
thedelacruz5 thedelacruz5 is offline
New Member
 
Join Date: Oct 2012
Location: CA
Posts: 5
10 yr Member
Confused Need Advice, Major Flare Up

I cant decide if I should go to the hospital or not. I need some advice...
Im having a major Multiple Sclerosis flare up. The left side of my face went numb a month ago, and a week ago, I began experiencing Optic neuritis in my left eye. Now I feel like im getting a cold, and 2 days ago I began experiencing Vertigo. I feel super weak and feel like im gonna drop to the floor every 10 min.
My doctor seems too busy to get back to me, he did order an MRI last week and Ive taken 5 days of oral steroids, but things are just getting worse. I want to avoid any permanent damage to my eye. Any advice?
Thanks
thedelacruz5 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (10-04-2012), DejaVu (10-14-2012), SallyC (10-04-2012)

advertisement
Old 10-03-2012, 12:20 AM #2
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

Hi there

I started with ON, and I didn't have any 'roids at all - it tool a long time to get over and I still have residual damage eleven years later. I had no idea what was going on and had not even thought of MS.

If it happened again, I would be hightailing it to the doctor/neuro/ER - your vision is something you don't want to mess around with. I don't think the steroids actually improve the final outcome of the attack, but if it helps to shorten the time frame....

Of course, if you have had lots of steroids, that is something else to consider. They can cause all sorts of problems with bone density and other nasties too if you have too many.

Tough call, but hugs and I hope things get better for you soon

Lyn
__________________
Lyn
.



Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-14-2012)
Old 10-03-2012, 12:42 AM #3
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

I thought oral steroids were contraindicated for optic neuritis. When I've had to take steroids for ON, they always give me IV solumedrol. (with a taper of oral steroids)
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-14-2012)
Old 10-03-2012, 11:23 AM #4
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
Default

Quote:
Originally Posted by thedelacruz5 View Post
I cant decide if I should go to the hospital or not. I need some advice...
Im having a major Multiple Sclerosis flare up. The left side of my face went numb a month ago, and a week ago, I began experiencing Optic neuritis in my left eye. Now I feel like im getting a cold, and 2 days ago I began experiencing Vertigo. I feel super weak and feel like im gonna drop to the floor every 10 min.
My doctor seems too busy to get back to me, he did order an MRI last week and Ive taken 5 days of oral steroids, but things are just getting worse. I want to avoid any permanent damage to my eye. Any advice?
Thanks
Honestly, if you have already done 'roids, there is not much more they will probably do for you. If there is going to be permanent damage from the ON, there is nothing you can do about it. Sorry.

I know this isn't the answer you want, but I don't think going to the hospital will do you any good. I'd try to rest as much as possible and kick the cold which will definitely help.l
jacksonsmommy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-14-2012)
Old 10-04-2012, 02:08 PM #5
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

i would find out what the mri report said, from whoever took it, or your dr.
and i should have been ordered with and without contrast. if not i feel like that's an X against your dr.

and i agree with the oral steroid comment. usually IV roids are given for a bad flare. so much depends on the mri report. do you have an active disease going on now? more lesions? this may also be another X against your dr.

do you have insurance? i'd try to get a 2nd opinion. get that report and read it for yourself. get a copy of it, plus the CD of the films. start a medical file of information on yourself. get your test results.

i do NOT think this is the end of the tx road for you. don't give up. keep pushing for answers and til you find a dr who pays you the time of day. if it takes going to the ER then i'd go. have you seen a neuro opthamologist for your eyes?

please do some of these things and keep up posted. if you're too sick, fever too high, can't see, or too weak go to the ER. try to stay hydrated, drink water. you can take OTC meds for fever reducers, take a lukewarm shower to lower you temp.

do you have a good pcp? call him.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (10-04-2012), DejaVu (10-14-2012), SallyC (10-04-2012)
Old 10-06-2012, 07:11 PM #6
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
Default

What is happening, Delacruz5?

ANN
ANNagain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-14-2012), SallyC (10-06-2012)
Reply

Tags
multiple sclerosis, optic neuritis, vertigo


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Any "go to" treatments for major flare ups? musicgirl757 Reflex Sympathetic Dystrophy (RSD and CRPS) 4 07-28-2012 02:20 AM
major flare. using sprix. tmullen Reflex Sympathetic Dystrophy (RSD and CRPS) 5 03-29-2012 05:24 PM
Having a major flare :( 89danboy Reflex Sympathetic Dystrophy (RSD and CRPS) 6 03-19-2012 06:57 AM
pseudo flare while still in a flare? legzzalot Multiple Sclerosis 9 09-29-2009 05:58 AM
Another Flare...? ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 12 12-21-2007 10:42 AM


All times are GMT -5. The time now is 11:38 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.