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Ok, so I did my 6 month review with my neuro, and I was telling him my fatigue is getting worse. I cant hardly get out of bed in the morning. After getting up and moving around a few hours, Im ready to go back to bed and I can sleep for hours. Anybody relate?? Well, he told me thats not fatigue, its just sleepiness. Im like WTH!!! Everything inside this 5'2 frame of mine is kiiling me! Aches, pains, muslce spasms, oh, ya'll know what Im talking about. Im just a BIT ANGRY at him right now. Maybe I just didnt explain how Im feeling right and he misunderstood me. Also, I have right sided weakness and he tests my strength every time I go in. Well, this last time, he wanted me to pull my arm away from him as he pulled it towards him. I did my best and he just shook his head and said "Try". WTH did he think I was doing?! I cant pick up my right leg in a seated position more than like an inch off the ground if that much, so he said "Pick up your leg and while Im pushing down, you fight back and keep it lifted." Well, I did what he said and as soon as he put pressure on my leg it hit the floor. He looked at me and said "Your just giving up." He did it again and lifted my leg up and bent my foot up (I have foot drop) and it caused so much pain. I was ready to deck him. My spasticity is making me very stiff and I told him that. My right foot no longer wants to bend, it stays at almost a perfect point anymore. Im tired of all this MS pain. If I was truely giving up, I wouldnt go back to him, I would quit all my meds and just lay in bed and let nature take over. But NO! Im taking my meds, exercising as best I can and stretching and yada yada. Thinking about making a hole and crawling in for awhile
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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