dear KL; many
and i'm a good hugger.

i once had a mildly similar thing happen with my rehab dr.
i got home and had lots of thoughts.
turned out i wrote him a letter of some of my hx etc.

maybe if you wrote your dr a letter similar to what you told us it might help.
and also tell him what you need from him.

might help. sounds like a very salvageable relationship.

I know you are not giving up. I have other issues, but i do go to a phyasiatrist. Best move I ever did. I think my PN or rsd is better. worth a try to seek out this kind of specialist. ginnie

I'm so sorry your neuro made you feel that way. It's so upsetting to feel so crappy and be in pain all the time and then someone says you're giving up.

Judy gave some great suggestions and it may help you feel better and help your doctor understand what you are going through.

yeah, the AFO that I have is one that's made out of aluminum and is connected with bracing and a hinge to my shoe. Has a strap that goes around my leg just below the knee. That thing cost about $800, and I hadnt yet hit my deductible yet when I had to get it...so I had to pay for it up front and a bunch of PT before my insurance kicked in for all the other crap I've had MS-wise this year.

At least I hit the deductible soon after getting the AFO. I wonder if I should ask my physiatrist for a Rx for another one so I can buy a pair of nicer dressy-like shoes to wear with a built in AFO.

Then I'd at least have more options for shoes. But, I would bet my insurance has a limit on how many AFO's I can get in one year for the same foot.

I've thought about getting the strap AFO thingie from the medical supply store. It sucked wearing this thing on my leg this summer with the hot weather.

Remember...Neuros can't crawl in your skin or your brain, so you have to tell them. If they don't listen, then find one who does. Just did it here...after alot of thought, I decided that I am a unique person & if a doctor can't understand that I may have unique symptoms...then he's in the wrong field & I need to find a different flavor doc.





Just did that myself...and boy, oh boy, did that feel good. Well, the replacing the doctor part...not the burying the body bit

Your friend is partially right...it takes alot of energy to do that...but, it also keeps your mind sharp, it keeps your brain working & endorphins, endorphins, endorphins...PLUS it keeps your empathy in tune. All in all...not a bad thing at all!

I sware my neuro thinks Im making stuff up sometimes. He gives me this look like, yeah right, and he prescribes me the minimum amount of a medication. Including prednizone even though Im going through a major flare up, at least as far as Im concerned. ON, Vertigo, and can barely walk. UGH Doctors!

I could have written the original post myself. If my neuro said I was "giving up" when it is physically impossible to do something, that person is in the wrong field. Unless I was in the back woods somewhere where it was impossible to find another doc, I would find another. This doctor seems to not understand that some people have progressed to the point of not being able to lift their leg. I would think this would be taught in the first year of their medical training. This doctor is also lacking in empathy, a skill that everyone in the hospital that I worked for had to attend, including secretaries, kitchen help - everyone - so staff could somewhat relate to and understand patients. I also don't think that Kittylady literally meant that she wanted to crawl in a hole - just venting her frustration at the circumstances. It sounds like she is trying everything she can to help herself!

For those of you who can still work, I am glad for you, and I hope you can continue. I also worked in a very high stress job, including night meetings, two children, and keeping a large house clean and in running order, until I progressed to the point of, unfortunately, not being able to work.

I personally couldn't stand a doc being condesending to me, would find another, and let them know why I did.

don't hesitate to find someone new. he is not listening to you. Prednizone? I do wish you all the best. ginnie

I've posted this link before, but it cracks me up every time! http://www.youtube.com/watch?v=THNPmhBl-8I

(Its only 2 min. long.)

Twink, I gave DH a tee-shirt that says - "I'm no Rocket Surgeon"

He'll admit he's no Brain Scientist either.