So how is your dispicable, worm crawling, dodo eating, party pooping, snotty, smelly, creeping, crawly, carpy, cantakerous, ugly, obnoxous disease treating you these days?

I'll tell you I am sick and dam tired of it, taking over my life, my fun, every move I make or thought I have. Not a good friend to have, even when we try to make the best of it. Like thread posts of "what do you not mind about MS".

Me? After raising a husband childen working and doing all the proper things thru 40 years of MS BS, I'm doing anything I really feel like doing and very little of what I don't. I'm only taking meds that actually make me feel better and no more of the ones big pharma want me on. No special diets for me, anymore...just everything in moderation (encluding the total)

So, how are you doing (insert biotching here)? And tell me, what are you doing or trying to do, to make your life happier?

Love you,

Sally

So, how are you doing (insert biotching here)? And tell me, what are you doing or trying to do, to make your life happier?

Hey Sally,

Right there with you on the frustration end of things; but keep going and doing we must...if only to maintain our sense of humanity toward ourselves and others. That does bring some happiness to me, but then again I still have a lot more function, independence and mobility than some others do.

Evenso, everyday it seems as if there is something else to contend with along with the usual challenges of pain, spasticity, cramps, numbness, vision loss etc. For heavens sake, it takes me 3-4 hours every morning just to get the body to the point where it is functional enough to leave the house or to do something meaningful.

How am I doing?
For the last few weeks I've been slowly bringing in the garden harvest and also working at my job part time. The body has not been very cooperative on most days but on others it is OK...just OK.
Most recently I've been experiencing a lot of numbness, and tingling in both hands and in the lower arms. The motor component is also caput when the numbness is in full swing and so gripping or using the fingers doesn't go very well.
This arrived on the heels of a bout of optic neuritis that was finally lifting a bit after over three weeks; so one or the other kept me from doing many things for the last six weeks or so. My dad came to help bring in the garden a couple of weekends ago and I was very grateful for the help because some of that work was impossible for me to do.

In answer to the question what am I doing to make my life happier, I would have to say that it is choosing to hold the most positive perception/attitude as possible. It seems to take just as much, if not more effort to hold a negative one, so I just choose to go with the positive one. 'De-nial' is more than a river in Africa .
I also meditate/contemplate a great deal so the worse things are, the more time I spend in meditation and/or doing yoga...at least as long as cognition is working and it has been since going on LDN . I do enjoy meditation/contemplation as well as yoga and so that makes me happy too.

Well, it has taken over an hour to type this up (hands are acting up), but I wanted to give you a BIG cyber hug, ((((Sally)))) .
You hang in there OK? You have been a supportive strength as well as the voice of wisdom for me since I came onto this site a few months back; and I am sure that you are that for many others as well.

BTW, where is Dejibo? I've been checking in on NT to read posts from time to time (sorry but typing to post myself has been tough and painfully slow lately), but I haven't seen any from her in quite a while. Sure hope that everything is OK with her.

With love, Erika

ErIkA, Yeaaaa, so nice to hear from you. You are right on with the attitude thingy. Great advise that I shall follow.

So sorry that the monster has been attacking you lately but glad you are standing up to it and giving it a good smack.

I've been wondering about Dej too. I checked the last time she posted and maybe we were a little hard on her? I don't know but love her and sure hope she hurries back.

Thanks for posting and thanks for being you..

OOS.. I forgot to mention that, one of the things I do to make me happy is coming here and talking to you guys.

Noone else responding? Did I do sumfin wrong?

Not at all Sally. I just can't muster the energy to do much of anything these days. I feel sapped.

Hi Sally...just got back from Green Bay, WI...travelled 2 1/2 hours in the dark last night to motel...woke up at crack-***** of dawn to shower, drink a load of ice tea & water...DH showered we trucked it 500 yards to Bellin Hospital (acckk, never been there...what a beautiful lobby!) to go to the basement level & have the dreaded, icky, nasty LP done.

If you are ever in the area...and have to have a medical procedure that you dread...these folks are SERIOUS about being nice, informative...and did I mention NICE to their patients.

LP was much easier this time (definitely not the torturous procedure I remember from childhood) & radiologist/anesthisiologist was very informative & listened when I said I have a high tolerance to locals (plus it ((shudders)) helps when you feel pain when the needle moves...).

Now, I am going to get off this bucket of bolts & go take a nap...since:

1. I can't remember what blood tests they took blood for...doc's office told me yesterday & patient advocate also told me after they drew it.

2. My DH & DD have both yelled at me to go lay down

3. oh...wait, there was sumptin' else...oh, well...

Have a good evening...will return later to see if anyone knows what those blood tests were...thinking Immunoglobins...but which ones...can't remember Ig or whatever...((rreally funny since I used to be a Phleb))

Don't let it win...ENJOY something every day ... even if it's only when the cat farts & it makes you laugh or...yeah, that makes us laugh...or whatever. Don't let it rob you of joy, mirth, smiles....easier said then done?? Nahhhh....FLUFFERNUTTER....((see, you smiled, I know you did))

How am I doing? Bloody marvelous to be honest! Tysabri is really working so far...

But BOTH my cats got bitten by a Brown Snake and we are now up to our eyeballs in vet-debt!!

What would make me happier? If my application for heating/cooling rebate went through smoothly and the snakes disappeared.

Ah, Dear Sal Pal, so refreshing to read your posts...you stare this ugly disease right in the face and stick out your tongue

After several weeks of blissful remission, the spasticity in the legs is back with a vengance. The bladder is leaking-freaking leaking!-whenever it wants, which is new. The fatigue is starting in after mornings of activity. And the brain farts are getting longer and louder

I'm anxious so often I'm tempted to start taking the anti anxiety drugs the doc gave me for the spasms...but I don't like to medicate any more than I already do. So I try to keep calm, but when your brain's on fire, it's tough to find the water bucket to put it out. When you do find the bucket there's a hole in it...sigh...

Oh well...I am trying to look forward to the two grandbabies that are due early next year...lots of blankets to crochet, which is my therapy...

I hate this disease. Period. It's not like I have cancer, I know. But I still hate it...

OITD, bad bad snakes, poor poor kitties. Happy the TY is working for you.

Debbie, I hate this stupid disease too.
New soft cuddly new babies should help to make you happy. Twins?

Well Sally, first of all

I'm not doing so well with these diseases. I'm so tired of all of it. Not only is my MS flaring up, but the meds I'm on cause dry mouth. So I have three teeth that will be pulled next Tuesday. Then there's the periodic paralysis that is also acting up.

I'm dropping things constantly and unexpectedly, bladder leaking is getting much worse, can't remember conversations to save my soul (I completely forget what I'm saying mid sentence as well), fatigue is out of control and my insurance wont cover the med my doctor wants to put me on, I have to go surrender my license because even the doctor says that at this point she doesn't see me driving again, I can't fill out paperwork at all (my poor hubby has to do it), numbness in personal places at very in-opportune times, breathing is getting worse, trigeminal neuralgia keeps getting worse, optic neuritis also keeps getting worse, nausea has been so bad I can't hardly eat. I just can't seem to win, every time I think I'm getting used to a new symptom another one pops up to make me miserable.

But my son is in kindergarten this year. We all got Halloween costumes for a total of $10. Actually the cost was all for my costume because both of the kids' costumes were hand me downs from cousins. I love having a big family! My kids are very good at helping me when I need it, I also keep getting compliments from so many people on how well my kids behave.
When I need to cry because I just can't take it anymore my husband holds me and lets me cry it out.

So I just saw something on facebook that really got me thinking. It says, "DON'T QUIT. You're already in pain. You already hurt. Get a reward from it." Not really sure I can get a reward from MS but..... Thanks for the vent session and sorry I haven't been here lately, haven't been feeling good.

Kristie