Well Lyn, it looks like our way of thinking was shot down by some. But I still wonder how much input she had in this descision to "out her".

I want everyone, encl. myself, to see the whole spectrum of disability and pain this miserable disease dishes out. I don't like being put in a spot of not wanting to see it.

Because I have some doubts about the validity of this sudden effort from her DH, only means that I have her best interest at heart and how I would feel.

I'm proud of my age and how I look now. Worked long and hard to get here, so Vanity has nothing to do with my thoughts about this. But I still don't desire peeps to see me at my worse and I don't think our Annette would either. JMHO!!!

So there.....

We have no way of knowing what arrangements were made between Annette and her husband before she became unable to express herself to others.

Sally, your use of the term "sudden effort" regarding her husband's actions confuses me. Not sure what you mean about "sudden". I don't know what you mean, sorry.

If anyone thinks their way of thinking has been "shot down" because others disagree, that just isn't how it works. We are all allowed our way of thinking.

I will read but do not intend to post again on this thread. I don't want anyone to think I'm "shooting down" the ideas or opinions of others.

Well...hey...I don't feel like I have been 'shot down' I just didn't feel entirely comfortable because I didn't see anything resembling consent on her behalf. That doesn't mean that they didn't talk about it and plan it before - they may well have - and the discomfort that I felt from her husband could simply have been him being protective in the way that he was following her wishes.

I don't know, and I can't speculate as to their motivation as I have previously said. I can only speak for myself and my wishes to keep my privacy - which is NOT driven by vanity, but by a desire to keep whatever privacy I can maintain, for the sake of my husband and kids.

I also think that MS and it's ravages should be shown in all its extremes - not just the sanitised version that the big pharma companies want us to see (as results of their wonder drugs) and I have friends from all ends of the MS spectrum - so I am not wearing 'blinkers'.

I hope this gives an insight into my comments. This nasty little monster will do whatever it chooses, and we are at its mercy. I get that the general public need to get this. I just don't want to think of anyone being damaged any further than they really need to be on the way.

All of you are as equally entitled to your opinion, as I am to mine, and that is what makes this forum such a wonderful place. It would be very dull if we all typed the same thing and felt exactly the same way. Sure, it is nice when people agree with us, but I thank you all for giving me lots to think about and it is so nice to be able to express an opinion without nasty replies, but intelligent and thoughtful responses.

Cheers

Lyn

Well said Lyn, thanks. Sometimes my eyetooth gets in the way and I can't see what I'm saying, and you, so wisely, said it true.

Thank you Kicker for understanding.

Jeez, I said I wouldn't post again and here I am. My Aunt and Uncle committed Murder/Suicide. Sounds terrible doesn't it but I see it as an act of love.

She had several strokes in a row, couldn't move, was bedridden. He had several health issues himself and each day could do less. I don't know and never will, if they had agreed to this or it just happened. The very thought of some stranger seeing to all her intimate needs was a driving reason as I see it. He shot her and then himself. I see it as an act of love, so like them.

There was the distraught brother outside their home (my Dad) who feared what would be found as his son (my brother)"broke" in their home to investigate and found their bodies and blood. My brother saw it as an act of love too.

Life gets terrible sometimes in a million different ways.

This thread has been quite insightful to me. It brings up issues that all who live a long life will face-declining with dignity, assisting those we love and/or who love us as we travel that path, and how much we should examine the ravages of this horrible disease.
Truthfully, I didn't watch the whole thing; it was too painful for me. I had never seen an MS patient that advanced. It wasn't about seeing a celebrity in this condition; it was seeing someone with the disease I share in that situation. Granted, she was Dxd with PPMS even before there were DMDs right? So she might have ended up in this condition even with DMDs since they don't help PPMS patients.

Still and all, I think it was a valuable thread; I needed to see this to remind me that I am not dealing with a pussycat, but a monster. I have given myself my DMD every day like a good girl ever since...

I hope that people with MS (especially newly diagnosed) and the general public, if they watch, will watch to the end and note that Shelley Fabares points out that this is what MS "can be", not what MS "is".

I have mixed feelings. While I want everyone to know how devastating it CAN be, I would hate that someone, especially a young person, sees this and thinks "This is my future".

But I want people who can support research financially, for example, to be reminded of how bad it can be.

Ummm, I am really close to asking the mods to close this thread because it has gotten way off course.

The purpose of this short documentary was about creating a foundation to promote giving others with MS a chance to go through the CCSVI Procedure.

The motivation as stated in the short was that he perceived a positive difference in her disability to the point where, along with what appears to be backing of her inner circle, a good cause could generate funds.

Again, he does not need money. He is well taken care of by the Disney Foundation.

The focus was to be on CCSVI and MS.

So, mods...if you can. Please close this and let me have the last word!