I waited too long, now thread is closed, so I must get my chance to say..God Bless Her, Her Husband, and Dr Zamboni.
Thank you for posting original thread & link Aarcyn!

Amen to that Eddie.

Concerning the care Annette receives from the Disney foundation and from her husband, I have some thoughts about becoming old and dependent without such good support. I work as hard as I can to be independent, knowing how much I would hate a nursing home. But as time moves on, I know I may end up in a poor nursing home, the one we have here. I have no husband; I was HIS caregiver until he passed nearly 4 years ago. My son and family are interested only in themselves and are grateful if I baby sit and help that way. I have enough money to get by the way I am in my own home, but certainly not enough for either significant home care or Assisted Living.

The worst thing is that repeated attempts to find out what I can possibly do have failed. Even before Irv died, I could find no real information. The best info I found here was from a man who was divorcing his wife so that they could work out financial arrangements easier; it was his only reason for seeking a divorce.

I keep my faith in God up high, hoping always He will take care of me. But I am afraid.
When I jerk and spasm all night, or itch all night (due to Polycythemia Vera), or wonder if I will bankrupt myself at the dentist, I cry a lot, every single day. I know many here must feel that way. I pray for us all. God, will you help those here on the MS forum?
Thank you.

Mariel