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Old 10-25-2012, 01:31 PM #1
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For those who remember, I was diagnosed with MS over 20 years ago. I went to an MS specialist two years ago who said he wasn't sure that I have MS. My regular neuro here went right along with him.

Today I saw another neurologist who re-diagnosed me as having MS, and who is starting me back on Tysabri next week. Dr. Burch is a wonderful person as well as a wonderful doctor. He is nice, he listens, and he cares.

I am at peace now.
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Old 10-25-2012, 03:23 PM #2
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Yikes!! So glad you're comfortable with your doc now...what a journey...

Hope the tysabri goes well for you and helps...
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Old 10-25-2012, 05:38 PM #3
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That's great Mair. Hope the TY does wonders for you..
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Old 10-25-2012, 11:35 PM #4
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These back and forth stories are not so rare as one might think. I did a few swings on that apparatus myself. Back and forth, doctor to doctor.
So very glad you feel peace!
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Old 10-26-2012, 09:29 AM #5
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Good for you! Being at peace helps in so many ways you don't even realize.
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Old 10-26-2012, 11:34 AM #6
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Quote:
Originally Posted by Sparky10 View Post
Good for you! Being at peace helps in so many ways you don't even realize.
That is so true, Sparky!
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Old 10-26-2012, 11:43 AM #7
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Quote:
Originally Posted by Mariel View Post
These back and forth stories are not so rare as one might think. I did a few swings on that apparatus myself. Back and forth, doctor to doctor.
So very glad you feel peace!
Thanks Mariel!

I had heard of a few people having their MS diagnoses taken away from them, but I figured it was rare.

When it happened to me, it felt like the world and everything I believed in came crashing down. It was awful! I talked it over with my PCP. He was the only one who said, "until someone can prove to me that you don't have MS, I believe that you do." That was like being thrown a lifeline.

It got better after awhile. I knew in my mind what I had. I still had my tremors, numbness and tingling, trouble swallowing and holding my urine, and my arm and leg weakness. While I was on TY for two years, my tremors and weakness improved. Didn't go away, but there was noticeable improvement.

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Old 10-26-2012, 04:42 PM #8
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oh my gosh. that would throw anyone off.
i hope the TY works again for you.
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