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Old 12-10-2012, 09:21 PM #1
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Theres so many different treatmens for Crohn's now including worms...as for treating your legs-is it tightness? Pain?both? Have your tried cannabis? Zanaflex? Clonopin? Botox?
I wish you could get relief. Pain/spasticity of my legs & back are my main Sxs as well as cognitive problems. I don't know how people keep on going when things get worse...honestly, I gave birth to 2 of my 4 kids w/o drugs and this is so much worse-no letup...
Let us know how you're doing-and keep on bugging yr doc-you deserve relief!!
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Old 06-04-2013, 05:50 PM #2
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I have asked about LDN, but both my gastro and my MS doc believe they need more double-blind studies before they will recommend. Seems simple to me.

Well, I go in Thursday for EMG/NCVs (repeats . . . my third time in a decade) and my first Botox. She plans to inject my calf muscles and my feet. It is getting so bad (here is how I gauge bad) that even a great movie or TV show (like Big Bang Theory) is not enough to keep me distracted anymore.

On Saturday we go to Portland for my granddaughter's first birthday (I am making her cake . . . foolish? Maybe) and I am not looking forward to the 3 hours trips down and back. Ugh, I hate riding in cars.

I will certainly report if and when I get some relief, and maybe I will even give a blow-by-blow description of the process . . .
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