Reply
 
Thread Tools Display Modes
Old 02-03-2014, 11:14 PM #11
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
Default

Quote:
Originally Posted by Mariel View Post
I'm opposite of Erika. I have to have the heat up to 72 at least, at night, to help with jerking of my limbs and back. If I am too cold they jerk more. And of course I cannot wear any nighties any more because of itchy skin from Polycythemia Vera (have not found a fabric which works at night, although I do have ones which work by day). I usually sleep with the covers pulled way down, and the heat up.
This does not mean I like summer heat! I'm comfy at 72 but when it goes up to the real summer heat, like over 80 or 90, it isn't good.
The itch is driving me nuts at night--I often have to get up and drink more water or tea and watch something on the computer, because it distracts from the itch. People with PV usually have this itch and it is a major major symptom, hard to deal with, even with tons of body cream. I use only the purest body cream from the Health Store, read all labels.
It is exacerbated by the very very dry climate here, the dangerous drought we are in. Even an excellent humidifier does not do the whole job.
That's a bummer! I have gotten to where my clothes feel like sandpaper lately, even really soft clothes. Tag-less clothing has become a must, so glad this waited until that became popular.

I found a pair of workout pants today that feel ridiculously soft. If they work for me I will let you know to see if it's something you've tried, or something that might be worth a shot if you want.
nemsmom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (02-05-2014), Erika (02-04-2014), SallyC (02-03-2014)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The Cold, Hard Facts of PD - Is It Partly Caused by the Cold? reverett123 Parkinson's Disease 9 07-07-2011 03:31 PM
Could it be...a cold? Blessings2You The Stumble Inn 9 12-29-2008 06:23 AM
The Cold That Would Not Die highhatsize Bipolar Disorder 6 02-05-2008 07:06 PM
Hot/Cold and all the in-between septmystic Reflex Sympathetic Dystrophy (RSD and CRPS) 8 03-28-2007 01:04 PM


All times are GMT -5. The time now is 02:32 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.