I know Ive seen a post on this topic before but for the life of me I cant find it, or maybe I havent the patience to find it. Either way, Ive got these stupid vibrations going on in the lady area and now its spread to my bladder. Ive had this before but it would only last a day at a time and be gone for weeks then come back. However, Ive never had it in my bladder before, so thats a whole new and totally different sensation there Ive had this bought now for 2 weeks straight and Im at the point I want to scream! Its not painful, but its gotten stronger in intensity and wont go away! DH laughs at me when I squirm around or start getting angry at it and of course his laughing doesnt help me at all!! I told him "How would you like me to strap on that back massager to your ***** and put it on high for 2 weeks straight, day and nite, and see how you like it!" Well, dh suddenly had a change of heart and told me "wow, sounds really annoying". Bingo, nail on the head, etc. Ugh, IDK anymore. All my neuro will say is "Ah, all those MS sensations. You'll get alot of those." I feel like Im falling apart and there's nothing I can do but go along for the ride

I'm so sorry that you're getting the vibes KittyLady...and in the bladder...YIKES .

Baclofen seems to decrease the severity of similar sensations that happen in my legs, but I've never had them in the bladder. Might be worth a try though.

Hope that you feel better straight away.

With love, Erika

I can sympathize, KittyLady

I have had vibrations, off and on, since my first exacerbation...28 years and in the same places you are having them plus my legs. I absolutely hate vibrations.

I hope they go away for you soon

Oh, KL. I am sorry this is happening to you. I didn't even know about this symptom!

For others that have it- do you treat it like other parasthesias?
ANN

..OK out of my system now,

but seriously I haven't had any such vibrations there from MS, I don't think?

I was talking about the vibrations I was getting down there some months ago but I don't know about the bladder. It was in my anas before and my thigh is the most. I didn't do anything about it because it went away on it's own but I don't even know what to do about it.

Sorry, I think that is something your just have to deal with I think, I don't know.

Hi...sorry to butt in on the conversation....but I also have those vibrations in my legs, feet, and the other part mentioned. I do not have MS (that I know of) but I do have soooo many of the symptoms. I am in the process of getting a diagnosis. My MRI came back normal of the brain about 5 months ago but I go back to my neurologist next week for follow up. The one thing he is saying for why he doesn't think it's MS besides the MRI is that I have bilateral symptoms. Does this sounds right? I know it takes an eternity to get a diagnosis for MS so I'm just curious what your experiences have been. I can tell my symptoms from start to now if anyone wants to provide some insight. Thanks!

The neuro you are seeing is wrong. You can have bi-lateral symptoms and have MS.

Have you had a MRI of both brain and cervical spine? If not then please speak to your neuro about doing both. Lesions can and do show up anywhere along the cerntal nervous system.

This disease has always affected me bi-laterally...waist down/both legs. I also have a very fine tremor in both hands. It is a rare occurance that MS affects me on only one side.

I can tell you this that when I first started getting the vibrations I thought it was my cell phone. didn't tell my dr until it started one time and didn't stop and he sent me for a egg I think it is called and it was normal and we never thought about it again.
I don't know what your dr is talking about but they never want to think anything of what is going on with you.

My dx came by acident. I was admitted into the hospital because I had numbness in my mouth and they thougt it was mini stroke. ok ct scan and mri nothing they said never mine there were lessions they saw but no one never said anything to me about it. my primary came and got me out of the hospital so fast the next day and said you are fine. so 3 months later same thing and my throat got smaller and I could not swallow food good and my tongue was numb too. this time the dr told me about the lessions and said we think it is ms but the neuro he sent me to didn't get that memo she just thought she was seeing me about my migraines but I told her what they told me when they were discharging me and she said oh I see the notes now. after she dx me she wanted to take it back all because my bp went up so high after the steriod infusion she ordered so then she was back to I don't think it is ms because your bp was just too high.

Keepingfaith, the experiences of Snoopy and Shadiya, as well as what many others here have related should encourage you to forge ahead...and to take the opinions of physicians and neuros with a grain of salt.

I too have had bilateral symptoms; and have also had different physicians/neuros/radiologists say definitely MS, as well as not over the course of 35 years. Even as recently as last year, a new neuro ordered up a whole battery of tests to rule out NMO (apparently negative).

It seems that with newer diagnostic tools as well as more research information on MS becoming available, some medical practitioners see us as a collection of data rather than as human beings that can tell them a whole lot more about what is going on, than the test results and criteria can.

Perhaps if more would take the time to really listen to what their patients are telling them, and maybe spend some time reading the posts on forums like this one, a greater understanding of the variability of MS symptoms and test results might become more apparent to them. That is my hope.

I wish you the best of compassionate care and understanding with an MS neuro that understands these things .

With love, Erika