How does it hit that hard? Right off the start you're where many of us will take years to get too. What does this mean for the future? Is it progressing any further and is it stable right now?

Sorry if my questions are invasive...I'm, just trying to learn all I can about this BS.

Eric, first off I am not bothered at all by questions. I was dx'ed with primary progressive as soon as got a dx, so I am not in the majority group.

At times I feel that the news and even the MS organizations do a disservice by showing actors, politicians wives, ect. that may have a milder form, or a lot of cash to handle their situation? Perhaps if they focused more on those that don't people would have a better grasp of the disease?

I was 52 when it hit, I was able to retire, and had really done a lot of things of personal interest to me in life, so it is just a new source of constant adjustment for me. One of the many learning experiences in life I could have done without, but there were no guarantees at birth?

Chit happens? so it seems does MS. I was never much of a complainer, whiner, I just take things as they come and deal with them, or at least try to get some laughs from them!

I diagnosed myself thru my own research into the name of an illness the doctors seemed unable to get labeled correctly. It was confirmed by a specialist after I got rid of the quacks! A lot of the things in the differential diagnosis seemed a lot worse, and I am still around to have my laughs!

It was deemed a pretty aggressive onset and the progression continues, oh no! I'm going to die? Heck we all do sooner or later, I want to go out laughing!

I agree with you 100% Very rarely do I run onto any of the more aggressive MS people that have MS. LOL what I mean is.... the more aggressive forms of MS...You always see RRMS. So I know where yerr coming from and can see how that sucks for you.

I just cannot believe how damn random and .......... unforgiving MS is. I mean for you it just hits you full force and no breaks...I cannot or do not want to know what it is like. I got the DX of RRMS, but after years of brushing off symtoms and just other things. It took a dizzy and fallling spell plus some incontinence issues.....to get me into the ER thus the start of it all. I still feel good though minus two months ago when I got sick and everything went to hell I went fo ra good 10 mile bicycle ride today in 50 degree weather so that felt good....real good.

My walking is ok....I noticed I have a bit of trouble in a sprint....I cannot do it actually lol, but I can do a normal jog thus far.

I guess we all just have to keep ourselves ..... I don't know..... just keep trying to do what we always do.

Thanks fo rthe answer, it is appreaciated and I do wish you, for what it's worth, to remain as well as you can be.

Except for Annette Funecello, I saw that Tape of her
recently and she is in terrible shape. I'm glad her DH
made that tape and so sorry at the same time..

yeah and Richard Pryor. I remember that scene on the show "Chicago Hope" where he is sitting in the chair, shaking and going crazy from Multiple Sclerosis.

Seems Montel doesn't have it as bad as Annette Or Richard Pryor.

Wow, just talking about her. RIP Annette..