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#1 | |||
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In Remembrance
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Hi Luke. Welcome to NeuroTalk.
![]() From what you say in your post, it seems your Neuro suspects MS, but not yet willing to commit to a DX. A second opinion is a good thing to do or you could relax and "wait and see", which is what a bunch of us do or have done. In the meantime, if you have symptoms that are severe, then ask your Doc/Neuro/Optho to treat them, to give you some relief, while you (wait and see ![]() I hope you will like it here and keep us informed as to how your DX journey goes. Take a deep breath. Stress is a nasty trigger for MS symptoms. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#2 | |||
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Grand Magnate
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hi luke and welcome to NT,
i don't think there's anything wrong with getting a 2nd opinion, especially when you're dealing with something serious like probable MS. your dr must already had dx'd you if he's wanting to start you on MS meds. did they include any of your spine in the MRI? is he dx'ing you with 1 brain lesion? sometimes doing a spinal can be helpful if they find the results they're looking for which is something called O bands. 2 or more can indicate MS. you can look for an MS specialist for a 2nd opinion. to find 1 call 1-800-FIGHT MS. they will hook you up to your local MS society and they can send you md's for referral. you can also try to find an MS opthamologist to check your eyes. these options are your choices to make. you are your own best advocate. start to keep a medical file on yourself. ask for copies of your mri's and test results. other drs you see will want to see them. that gives you more control over your illness, whatever it may be. you may also want to research the current MS meds. you will learn a lot about the drugs and you can decide which 1 you want to take, if any at all. the interferon meds can give you flu-like side effects. i was on copaxone for 10 yrs and have done well. that's a daily shot but no side effects (se's). i know there's a lot to learn. try to take 1 thing and 1 day at a time. we're here for you. MS isn't a death sentence. no one, not even healthy folks, can see into the future. please let us know how you are.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#3 | ||
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Senior Member
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Hi Luke.
![]() Sorry you need to be "here." Welcome! What Sally and Nancy have said is very good advice. I also think a 2nd opinion w an MS Specialist would be appropriate. If you have a history of depression, I would steer clear of interferons, especially Rebif. I hope you have a friend or family member to confide in. ANN |
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#4 | ||
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Hi there, Sky... take a deep breath and don't get too worried. I did worry for a long time(I knew it could of been MS) with reserching the net for the symptoms I was having. I fell due to a bad head spinning spell one day and that was it...I called mom and said we had to go get this "thing" checked. I actuallly went to the emergency room that day. My Symps were going on for almost ayear before I decided to do something. I always brushed them off as high blood pressure or something. Well it didn't take long before they told me I have MS.... and the scarring was already along it's way. Some damage was already set in, because I didn't get checked out when I should of been.
You're doing it right...you got in there and things are being done...now just try and calm down and take it slow. And yes I would get a second opinion after hearing what you wrote......err I should say seeing what you wrote lol. "brain fog" |
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#5 | |||
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Member
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Thank you for your responses.
The big problem with getting a second opinion is that I don't have the resources aka the funds to do so. My mother actually paid for the neurologist and mri visits and that was a lot to pay. So I'm out of money at this time. I'm really new to all of this and I feel better than I did yesterday, I try not to think about it right now. I've just kept myself busy, usually just surfing the web. Questions for you: -Does DX mean diagnose? -Why can sometimes only double vision happens while you are in a moving vehicle? Now to answer some of your questions: -I only had 2 MRI's done on my brain, not my spine. They also did 3 different blood tests, but they came back negative. -He is not only diagnosing me with just one lesion, but the fact that I have had transient double vision, blurred vision and headaches. -He is diagnosing me with MS for medical records, in case I file for disability before my next MRI in three months, if I am understanding him correctly. I have enough evidence, he said, to diagnose me with MS. -Refrib is the medication he wants me to try. I was told a nurse is suppose to come and give me the first few shots in my stomach. -My doctor knew that I was on bipolar meds before, and was taken off. -I have so much stress, esp the last 2 years. my father passing, divorce, 2 surgeries, and now this. Things were better for a few months after Sept, but this year hits and you know the rest. |
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#6 | |||
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Grand Magnate
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hi luke,
i don't know the answer about your vision but yes, dx means diagnosis. sx = symptom, tx = treatment, h & p = history & physical. just monitor your mood with the rebif. it's an interferon class drug and those can cause depression. you'll know. that's 1 reason i was on copaxone. i had a hx (history) of depression and did well on the copaxone. i know you're dealing with a lot. we're here for you.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#7 | |||
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Elder
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I just want to say welcome, you are in the right place and I lOVE your name!!!
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"Thanks for this!" says: | SallyC (04-08-2013) |
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