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#1 | |||
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Member
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Since i'm expecting Tecfidera to shine, amongst a HUGE portion of MS'ers, it's time for a positive results thread for the soon to be success stories.
I'll reply after my 1st week on & yes, i'm hopefull it'll be positive. |
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#2 | |||
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Elder
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I thought about it briefly but I am doing ok on Copaxone. I hope you'll have great results and I look forward to hear how it works for you Eddie!
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | EddieF (04-30-2013) |
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#3 | |||
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Grand Magnate
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Eddie, you are one of the most positive people ever. If BG-12 was approved for PP, I'd try it. Keep us informed about your journey. Hope it helps you. You make me feel better with your positive attitude. Thanks.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#4 | |||
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Senior Member
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I'm with you, Eddie! Waiting on financial assistance approval from MSActiveSource. Neuro's nurse says it takes about 20 days, so May 4th is 20 days from when she sent in the paperwork. Had my baseline MRI and bloodwork done on the 12th.
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RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
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#5 | ||
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Senior Member
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Eddie,
I hope it works for you- even better than you can dream! ANN |
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"Thanks for this!" says: | EddieF (04-30-2013) |
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#6 | |||
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In Remembrance
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I wish you only the best results..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | EddieF (04-30-2013) |
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#7 | ||
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Junior Member
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I switched to ARRP medicare RX plan d this year and it said it was covered for secondary progressive and I believe primary too. Good luck!
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"Thanks for this!" says: | ewizabeth (08-28-2014) |
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#8 | ||
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New Member
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I had to re-start the high dose after experiencing the bad side effects. But the second go around I made a lot of changes to my diet, took only 1 240mg pill a day until I felt "good" again, and aggressively treated every side effect.
When I added the second pill at night, I went back to the changed diet, aggressively treating every side effect, etc., and within three days, I felt good again. The only side effects I feel now is a light "sun burn" feeling on my legs from time to time, and a little heartburn (nothing like the fire in my digestive system the first go around!). I had been going downhill rapidly before I started Tecfidera. I've now been on the full dose for a month and I feel better than I've felt in years. I hope it's the drug and not a coincidence! I would think I would have to be on the drug for a year at least to know if I really am stabilized, or maybe getting better (I know that's a dream, but I can hope, right?) Has anyone else out there felt better on the drug? Has anyone else seen improvement while on the drug? |
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#9 | |||
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Senior Member
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Quote:
Glad you are feeling good on the med. I cannot say I feel better on it, because I never felt bad before.
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RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
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#10 | |||
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Member
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jfcincy56
I think we will find in the near future that the dosing schedule needs to go slower for this drug. Most people are fine until they hit the full dose. I think they start the full dose a little too soon. So happy you are tolerating TEC! I pray you see real results soon ![]()
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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