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Old 07-09-2013, 12:19 PM #11
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I know that beta blockers can cause neuropathy (right Mrs D?) and I have small fiber neuropathy already, so I doubt I want to add that.

I found this video online, it's really close to what was going on with me:
http://www.youtube.com/watch?v=ssiFREZ2ng8
Yesterday I had to check off numbers off a page and when I was holding the pen my hand shook horribly until I got it down onto the paper and concentrated on what I was doing. It's not as bad as this guy, but it's only been happening for a week.

I did take a Soma last night. I read some info online that stated docs like to give out Baclofen more than Soma, which is why I read about it on here more. It helped enough that my arm didn't hurt. The tremor didn't go away entirely. I suppose that it would be a good idea to go get a real prescrip to Baclofen now? Will my PCP prescribe that, or should I go to the pain doc?

Part of me wants to put up a stiff upper lip and just move on, part of me wants to hide in a hole and sleep for a year.
I am unaware of any direct link between beta blockers and neuropathy. Beta blockers can make hands and feet feel cold, and they may tingle when they warm back up. There are a few rare reports of beta blockers linked to a rare form of muscle damage however (myopathy) and even a rare drug induced lupus. But these are very few in number at PubMed.
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Old 07-09-2013, 12:30 PM #12
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Thanks Mrs. D. It must be something else I was thinking of.

I'll try the Xanax if it starts again today and is really bugging me. Thankfully I have a really low dose and can take one and not feel odd. Never had a Klonopin but I guess I'll have to ask for it if the Xanax does help.
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Old 07-09-2013, 01:40 PM #13
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I have had tremors since my very first attack, and they have never went away. Haven't found med that works for it yet. I know some people don't like it but when I smoke pot, it almost eliminates it, helps real well with the brutal spasticity i get to.

Pills are out of the question considering i have stomach problems, hopefully they find something one day for all these terrible symptoms!

Hope you feel better!
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Old 07-09-2013, 02:08 PM #14
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Quote:
Originally Posted by chaos View Post
Never had a Klonopin but I guess I'll have to ask for it if the Xanax does help.
Xanax and Klonopin are both Benzodiazepines. If Xanax doesn't help it would be highly unlikely Klonopin would.

The only difference, that I am aware of, between Xanax and Klonopin is how long they stay in your system. Klonopin is a longer acting Benzodiazepine.

Caution should be used when taking Benzodiazepines --- they are addictive.
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Old 07-09-2013, 02:09 PM #15
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Nope, pot hasn't helped this at all. I actually read that cannibinoids don't help this, they've studied it. I use it for my other pain, but that miracle plant doesn't help everything.

Have been looking online and calling around all morning. Found a doc that is accepting patients and had a good review, and he's out on vacation! Sigh.

And yeah, aware of the addiction thing with the Benzos. I hate pills, and after being addicted to percocet after my hospital stay, I will not allow myself to be addicted again. The only reason I have some Xanax is from when my thryroid was all wonky. Huge anxiety for the first time in my life.
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Old 07-09-2013, 08:12 PM #16
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The other course of meds that I've been through have been various anti-seizure medications to help with my tremor. I have some PN as it is, and none of the meds have made it worse.

Just so's you know.

I have a follow up with my neuro on Thursday regarding my tremor (and other things). I'll let you know if I get anything helpful?

Question--if you drink, does alcohol help? and do you shake when you sleep? Can someone help answer that question? These questions help in diagnosing what kind of tremor you might have.
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Old 07-09-2013, 09:30 PM #17
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I'm very relieved that MrsD says beta blockers do not cause neuropathy, since betas and neuropathy are a big part of my life. I take Propanalol to somewhat slow heart rate and prevent atrial fibrillation. I only take 15 mg a day, which seems to do the job, although some have to take much much more. Propanalol is my buddy, one of the drugs I can take without side effects. Believe me, that's big for me.

I also take Klonopin and I cannot take Xanax. They are different entirely in my metabolism, although both are benzodiazapines. I was in a study for Xanax before it was on the market, and two small pills made my arms and legs virtually unmovable. They moved, but so slowly I could hardly climb two small stairs in the place where we were trying out the Xanax.

On the other hand, Klonopin saved me from an addiction to Meprobamate. I had been on a bad drug called Mepro for many years, to halt spasm of the gut, so that I could work. It is very addictive and I could not get off it, when a doctor told me it might be contributing to neurological symptoms I was developing, especially eye problems and dizziness. I tried for a year. Then a smart pcp (the one from whom I got my first dx) told me to take Klonopin, which would enable me to stop Mepro cold turkey. Yes! It worked. I was on an average dose then, but gradually lowered it to the very very low dose I take now, which is .25 three times a day. Someone might say I am addicted but as far as i can see it just stops the inevitable big spasms I will have, especially in my arms, if I don't take it. When I didn't have it for two and a half days, while in Canada, I developed a major and frightening spasm in my arm. I cannot see any side effects, certainly nothing like Xanax. Although I am walking slower now due to neuropathy, I can climb two stairs better now than many years ago when I tried Xanax.

Isn't if miraculous that the metabolic systems are so fine tuned that there can be this difference between two related pills?
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Old 07-10-2013, 10:31 AM #18
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I had a drink last night right after work(and Ace Pear Cider, yum). It didn't seem to help, maybe if I had drank more, but I'm not a huge drinker. I had dinner, waited a couple hours, and once I knew the alcohol wasn't a factor, took a xanax. An hour later I realized I hadn't shook since I had taken the xanax.

No, I'm not shaking while sleeping. I do have periodic limb movement disorder, and normally flail around during sleep, abusing my husband! But no shaking. It only seems to happen when I have my hand in certain positions, when holding something in my hand, reaching for things. It moves up my arm as it gets worse I've noticed. I believe this is an Intention Tremor that is cerebral...which means it's my brain.

I take Oxcarbazepine for my PN, not Gabapentin as that made me too stupid. I've read the Oxcarbazepine can help with tremors. Of course it's listed as a side effect too, but doesn't everything?

Got an appt with my PCP for tomorrow as I can't get into see any neuro anytime soon.
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Old 07-10-2013, 05:09 PM #19
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Another question - could the tremors that started last week be an exacerbation? Especially since it's a new thing that came on quickly?

The past few weeks have been bad, first edema, then hives, now tremors. The Prednisone did make me feel better, but it was a low dose. I keep reading "oh you'll know it", but to me these things, especially the tremors, are a huge red flag. My speech isn't that great, I've noticed I've stuttered again over the last couple weeks. I have to keep telling my husband to let me talk and give me time to get out what I need to say.

All this is hypothetical, but since I'm going to just my PCP tomorrow, I like to be prepared in what I need to tell him. If it's an exacerbation, wouldn't it be beneficial to deal with it asap? So it doesn't get worse? I need to be firm with him on what I want to do. Or do I just treat the symptoms still?

Thanks all. You should have heard the cup I was just holding, it sounded like a rattle or maraca with all the ice in it.
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Old 07-11-2013, 06:00 PM #20
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Just came back from my PCP. He confirmed it's intention tremors. Thought maybe it was the prednisone I just stopped (but I don't think so). He is prescribing me the propranolol, starting with a lower dose and going up if I need it.

I described to him the right arm issues I've had over the last few months, including dropping things and median nerve issues, a negative EMG. He knows I'm really worried about the MS, but wants to explore more before giving me IVSM. He was like "that's a LOT of medicine". Um, yeah, I just want to feel better. I need to work, be able to use a knife, etc. He was a little upset that my new neuro candidate is taking so long to "review" my files to accept me as a patient.

At least he didn't say to stop reading things on the internet. He said to email him if I needed to, which is good.
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