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#11 | |||
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Wisest Elder Ever
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#12 | |||
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Member
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Thanks Mrs. D. It must be something else I was thinking of.
I'll try the Xanax if it starts again today and is really bugging me. Thankfully I have a really low dose and can take one and not feel odd. Never had a Klonopin but I guess I'll have to ask for it if the Xanax does help. |
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#13 | ||
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Junior Member
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I have had tremors since my very first attack, and they have never went away. Haven't found med that works for it yet. I know some people don't like it but when I smoke pot, it almost eliminates it, helps real well with the brutal spasticity i get to.
Pills are out of the question considering i have stomach problems, hopefully they find something one day for all these terrible symptoms! Hope you feel better! |
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#14 | |||
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Magnate
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The only difference, that I am aware of, between Xanax and Klonopin is how long they stay in your system. Klonopin is a longer acting Benzodiazepine. Caution should be used when taking Benzodiazepines --- they are addictive.
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Dx RRMS 1984 |
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#15 | |||
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Nope, pot hasn't helped this at all. I actually read that cannibinoids don't help this, they've studied it. I use it for my other pain, but that miracle plant doesn't help everything.
Have been looking online and calling around all morning. Found a doc that is accepting patients and had a good review, and he's out on vacation! Sigh. And yeah, aware of the addiction thing with the Benzos. I hate pills, and after being addicted to percocet after my hospital stay, I will not allow myself to be addicted again. The only reason I have some Xanax is from when my thryroid was all wonky. Huge anxiety for the first time in my life. |
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#16 | ||
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Junior Member
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The other course of meds that I've been through have been various anti-seizure medications to help with my tremor. I have some PN as it is, and none of the meds have made it worse.
Just so's you know. I have a follow up with my neuro on Thursday regarding my tremor (and other things). I'll let you know if I get anything helpful? Question--if you drink, does alcohol help? and do you shake when you sleep? Can someone help answer that question? These questions help in diagnosing what kind of tremor you might have. |
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#17 | ||
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Member
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I'm very relieved that MrsD says beta blockers do not cause neuropathy, since betas and neuropathy are a big part of my life. I take Propanalol to somewhat slow heart rate and prevent atrial fibrillation. I only take 15 mg a day, which seems to do the job, although some have to take much much more. Propanalol is my buddy, one of the drugs I can take without side effects. Believe me, that's big for me.
I also take Klonopin and I cannot take Xanax. They are different entirely in my metabolism, although both are benzodiazapines. I was in a study for Xanax before it was on the market, and two small pills made my arms and legs virtually unmovable. They moved, but so slowly I could hardly climb two small stairs in the place where we were trying out the Xanax. On the other hand, Klonopin saved me from an addiction to Meprobamate. I had been on a bad drug called Mepro for many years, to halt spasm of the gut, so that I could work. It is very addictive and I could not get off it, when a doctor told me it might be contributing to neurological symptoms I was developing, especially eye problems and dizziness. I tried for a year. Then a smart pcp (the one from whom I got my first dx) told me to take Klonopin, which would enable me to stop Mepro cold turkey. Yes! It worked. I was on an average dose then, but gradually lowered it to the very very low dose I take now, which is .25 three times a day. Someone might say I am addicted but as far as i can see it just stops the inevitable big spasms I will have, especially in my arms, if I don't take it. When I didn't have it for two and a half days, while in Canada, I developed a major and frightening spasm in my arm. I cannot see any side effects, certainly nothing like Xanax. Although I am walking slower now due to neuropathy, I can climb two stairs better now than many years ago when I tried Xanax. Isn't if miraculous that the metabolic systems are so fine tuned that there can be this difference between two related pills? |
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#18 | |||
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Member
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I had a drink last night right after work(and Ace Pear Cider, yum). It didn't seem to help, maybe if I had drank more, but I'm not a huge drinker. I had dinner, waited a couple hours, and once I knew the alcohol wasn't a factor, took a xanax. An hour later I realized I hadn't shook since I had taken the xanax.
No, I'm not shaking while sleeping. I do have periodic limb movement disorder, and normally flail around during sleep, abusing my husband! But no shaking. It only seems to happen when I have my hand in certain positions, when holding something in my hand, reaching for things. It moves up my arm as it gets worse I've noticed. I believe this is an Intention Tremor that is cerebral...which means it's my brain. I take Oxcarbazepine for my PN, not Gabapentin as that made me too stupid. I've read the Oxcarbazepine can help with tremors. Of course it's listed as a side effect too, but doesn't everything? Got an appt with my PCP for tomorrow as I can't get into see any neuro anytime soon. |
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#19 | |||
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Member
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Another question - could the tremors that started last week be an exacerbation? Especially since it's a new thing that came on quickly?
The past few weeks have been bad, first edema, then hives, now tremors. The Prednisone did make me feel better, but it was a low dose. I keep reading "oh you'll know it", but to me these things, especially the tremors, are a huge red flag. My speech isn't that great, I've noticed I've stuttered again over the last couple weeks. I have to keep telling my husband to let me talk and give me time to get out what I need to say. All this is hypothetical, but since I'm going to just my PCP tomorrow, I like to be prepared in what I need to tell him. If it's an exacerbation, wouldn't it be beneficial to deal with it asap? So it doesn't get worse? I need to be firm with him on what I want to do. Or do I just treat the symptoms still? Thanks all. You should have heard the cup I was just holding, it sounded like a rattle or maraca with all the ice in it. |
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#20 | |||
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Member
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Just came back from my PCP. He confirmed it's intention tremors. Thought maybe it was the prednisone I just stopped (but I don't think so). He is prescribing me the propranolol, starting with a lower dose and going up if I need it.
I described to him the right arm issues I've had over the last few months, including dropping things and median nerve issues, a negative EMG. He knows I'm really worried about the MS, but wants to explore more before giving me IVSM. He was like "that's a LOT of medicine". Um, yeah, I just want to feel better. I need to work, be able to use a knife, etc. He was a little upset that my new neuro candidate is taking so long to "review" my files to accept me as a patient. At least he didn't say to stop reading things on the internet. He said to email him if I needed to, which is good. |
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