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#1 | |||
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In Remembrance
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I've never been on Rebif, but was on Avonex, another interferon
and yes I did get hot after the shot. I thought it was the flu effects, that the interferon's cause. Feel better soon. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#2 | |||
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Member
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I used to get a temperature every night that I had a Beta shot - and that is also an interferon - same mechanism as Rebif. It used to make my skin so sensitive and sore that it felt like I had really bad sunburn and someone had rubbed me down with sand or finely crushed glass.
Do you only get this on the nights that you have had your shot? Or other nights as well?
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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"Thanks for this!" says: | SallyC (07-16-2013) |
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#3 | ||
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Junior Member
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I have the temperature change even on the nights I don't inject. If I take a nap in the daytime, or should I say when, because I need one every day, I wake up hot. I took my temp.-not a fever. ![]() Chelle |
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#4 | |||
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Wise Elder
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Chelle - You've only been taking Rebif for about 7 or 8 months and the heat issues have been going on for over a year so I don't think it's the Rebif that's causing it.
I can't answer your question from personal experience as I have never taken Rebif, don't have hypothyroidism, and am not on the V Dot patch. but I have a friend that was on V dot and she experienced the same symptom. She finally stopped using the patch and the symptom went away. The hot flashes came back but she said it was far better than what she was dealing with while she was on the patch. (She had other symptoms as well). I have also heard from a few other women that they know people who experienced temperature regulation issues, for lack of a better term, while on the patch. It may not be what's causing your issue but worth a check. How long have you been on the V Dot? Also, it's my understanding that the V Dot doesn't completely get rid of hot flashes, but does help minimize them. |
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#5 | ||
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Junior Member
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I don't seem to 'remember' anything accurately anymore. I've been on the Vivelle Dot since July of 2006. The heat that I feel isn't like a hot flash. I'm just hot. It doesn't come and go, like a hot flash from hormones. Forgot to mention-I did my Rebif injection at 9:00 last night-woke much hotter at 3:00 a.m. Last edited by Yorkieville; 07-19-2013 at 04:04 AM. Reason: wanted to add something |
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#6 | ||
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Junior Member
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I 'thought' he was mistaken, when I asked him the date I started. ![]() |
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#7 | |||
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Wise Elder
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It probably is the Rebif that's causing the hot feeling you are getting. I don't know much about the interferons from personal experience so I don't know what would work to help you out with that. Maybe others will come on and have more advise, especially since you can't take Advil as TxBatman suggested.
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"Thanks for this!" says: | Yorkieville (07-20-2013) |
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#8 | ||
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Junior Member
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Quote:
Chelle |
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#9 | ||
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Junior Member
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I'm hot even on the nights & days that I don't inject. So, I think it is the Rebif. ![]() Thanks. ![]() Chelle |
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"Thanks for this!" says: | SallyC (07-18-2013) |
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