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Old 08-03-2013, 08:25 PM #10
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elinora elinora is offline
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Location: Minnesota, US
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elinora elinora is offline
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Join Date: Oct 2012
Location: Minnesota, US
Posts: 13
10 yr Member
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Thank you! To clarify, I have not been diagnosed with MS. I have been taking 416 mg of methylprednisolone weekly in conjunction with Imuran to treat Myasthenia gravis (autoimmune affecting acetylcholine receptors at neuromuscular junction). I was getting fatigue and sleepiness not attributable necessarily to MG and progressively experienced paresthesia since October. I had some small high signals in an MRI, but I have been taking steroids for a long time. The paresthesia has progressed to intensely cold spots, bee sting feelings where things touch or don't, and chronic weird sensations. We are reducing steroids to see what happens, and all things are getting worse, including unscheduled sleeping. It is all unnerving, no pun intended. Thanks for words of encouragement. I am afraid. I am a single mom and only financial provider to my children. I have been sick with MG for more than a year, and now I feel I am again in diagnostic limbo.
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