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Old 09-05-2013, 09:27 PM #23
Mariel Mariel is offline
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Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
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Join Date: Dec 2006
Posts: 724
15 yr Member
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I cannot have any cilantro. It is a no-no for people with Porphyria. It is a major trigger. We have it on our No-list at the Porphyria group I go to, but how many doctors would know this? Any at all? We just found it out by experience.
Erika, I am concerned that you have cut all protein out of your diet. Oh I know, there is protein in legumes and quinoa, and perhaps that will be enough for you, the combination of the legume and grain, which does make a complete protein. i was on such a combo diet many years ago and it did not help me, but my problem may be vastly different from yours. Eggs have always been one of my very best foods, so that is one element of the Swank diet I do not follow (he advises few eggs).

I am having just terrible inflammation in my feet from Erythromelalgia. It is a mystery illness which occurs in a minority of cases of Polycythemia Vera, which I have, but can occur in those who don't have PV. Even the Erythro newsletter is clueless. I suspect is is the irritation of nerves caused by tiny vessels being clogged by blood particles. It has become more mysterious because my blood particles stopped increasing. It may be that they are now more misshapen. I put cortisone cream on my feet, which helps but does not last, and I don't know if the doc will OK it for constant use--she gave it to me for skin inflammation, a different problem resulting from Porphyria. The bottoms of my feet are very red. Some cannot wear shoes or socks with Erythro. Leave it to me to get all the goofies.
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"Thanks for this!" says:
Erika (09-06-2013), SallyC (09-05-2013)
 


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