Thanks!
I've had ct scan, mri of brain and spine, blood work, and now the VEP. All have come back normal, except one lesion on my brain mri. This new neurologist said he is going to personally review everything. Said forget the other Neuro saying you are making it up and don't take the neurontin she prescribed. We are starting this all over.

He did find some decreased sensation and strength in my left leg yesterday. Also I sway a lot with rhomberg test and cannot walk heel to toe. Said overall my exam is ok, but something is definitely going on. He said he will not give any meds or specify what he is looking for until he is sure of what I have. I asked about my PCP saying ms and hejust nodded and said don't worry or stress we will get you a diagnosis.

I had a normal VEP also...and it took several years after that before I was dxd.

Patience is the main word when symptoms begin appearing...it's a combination of McDonald criteria and MRIs, I guess...my lumbar puncture was also normal.

Keep a symptom journal with dates, and remember to list your questions so you don't forget them in the doc's office.

And get on with living...I know how frustrating and fearful it is not knowing what is causing all of this. But as we all probably did, spending hours googling it and not going on with living is not something I wish to remember on my death bed. I still obsess about it all, but because it is interfering with normal duties at times, which can be scary as time passes.

Keep us up to date, please!! We all are a great support system and have lots of info from the patient's perspective, and most of us have been on a long journey to diagnosis. Plus, we're a nosy bunch

Ive had MS for 21yrs and my VEP is still normal. At least something about me is normal . Don't stress about it. This is not a quick and easy in and out kind of thing to diagnose. So many things to rule out and then like Debbie said its a combo of the McDonald scale, MRIs, LPs (that can be optional per dr's) etc. It all takes time and a WHOLE lot of deep breathing and patience. Im not so good at that last part...