Oh ((((Sally)))), what a worry this must be for you. Of course prayers and the best of wishes are on their way.

Maybe your daughter is just doing some research and covering her bases in the event that some intervention is needed at some point?
She really does sound like she has a good head on her shoulders from what you have written about her (the apple doesn't fall far from the tree).

I'm really hoping that she is just paying heed to the phrase "Hope for the best, but prepare for the worst."
Looking into and staying up to date on the treatments available for this stupid disease really helps to develop a plan of action, should the need arise. Having such a plan also allows one to carry on with life with less worry about the 'what ifs'.

Maybe ask her if that is what she is up to...so that you too can rest easy.

With love, Erika