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Old 09-23-2013, 02:08 PM #1
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The only thing I'm really upset about is the waiting time is now extended to December 23rd...three months out. My questions now are what to do in the meantime? What to do if I start hurting bad again? If the doctor thinks I might have MS, then why not go ahead and put me in the main MS Center?
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Old 09-23-2013, 02:13 PM #2
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I think you need to be asking your doctors these questions. They work for you. If they aren't answering your questions then it's time to look for a different doctor. Get a second opinion. Take whatever records you have so far and get another doctor to review them and see what he says.
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Old 09-23-2013, 04:59 PM #3
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My doc called me back, and is increasing my gabapentin, and also going to transfer me to the main MS Clinic there...so I'll find out when I go there tomorrow.
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Old 09-23-2013, 05:24 PM #4
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that's at least good news. you're working at being a good advocate for yourself.
it's a good sign that your dr listened and is responsive.

the folks here have good advice.
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Old 09-24-2013, 12:11 AM #5
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I'm just tired of going from doctor to doctor! I never knew this could be so draining by just that along with the MS pain. I'm just tired of all this
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Old 09-24-2013, 08:01 AM #6
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You and all the other MS patients out there. It's a game of eliminating certain conditions and finally ending up with MS. It's tiring but we all want to know what's really wrong, don't we? I hope the MS Clinic can shed some light on this and find out something certain for you.
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Old 09-24-2013, 06:42 PM #7
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What I don't understand is the brain MRI with the one big white lesion and the pain are the only things right now that show that I have MS.

The neck MRI, the upper back MRI, the spinal tap and all the blood work shows all normal.

The week before I had the spinal tap was the first time after I stopped Rebif months ago that I had another MS hug from my lower back, around my waist and down my legs.
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