that's at least good news. you're working at being a good advocate for yourself.
it's a good sign that your dr listened and is responsive.

the folks here have good advice.

I'm just tired of going from doctor to doctor! I never knew this could be so draining by just that along with the MS pain. I'm just tired of all this

You and all the other MS patients out there. It's a game of eliminating certain conditions and finally ending up with MS. It's tiring but we all want to know what's really wrong, don't we? I hope the MS Clinic can shed some light on this and find out something certain for you.

What I don't understand is the brain MRI with the one big white lesion and the pain are the only things right now that show that I have MS.

The neck MRI, the upper back MRI, the spinal tap and all the blood work shows all normal.

The week before I had the spinal tap was the first time after I stopped Rebif months ago that I had another MS hug from my lower back, around my waist and down my legs.

That is not unusual. It may just mean that your MS is either not
active or you haven't formed any cervical lesions,yet.

So if this one brain lesion is causing all of this, then I hate to see the pain that comes with other lesions...

When I was diagnosed over ten years ago there were only a few tiny spots on my brain, then later they found a tiny cervical lesion. My MS specialist said that he had seen people with one tiny symptom and their brain MRI looked like popped corn! So lesions do not always correlate with symptoms. My many early symptoms have mostly calmed down now but my MS fatigue has stayed with me. You'll get through this, and we all know how stressful it is in the beginning.

I feel your frustrations cause I am going through much the same thing. I had MRIs done in April and had one lesion in my brain and nothing on the spine/neck. Symptoms are all there, one lesion, blood work all comes back good (meaning mimicers are ruled out). Visual evoked potential came back good. Haven't had a lumbar puncture done yet; oddly hoping they do it at my next appointment on Tuesday and it shows something! I haven't gotten a diagnosis yet. Last appointment (end of August) the neurologist said my physical exam wasn't bad, but definitely seems some nerve damage/delay in my left leg.

I'm so sick of all the doctor visits and testing as well. At this point kind of wish they'd just find something and give me an answer already. It's been 9 months of pain, doctors, tests and no answers.

So, I feel your frustration and hope things get rolling for you and you can find a better state of 'normal' soon.

Wishing you some answers too Juniebear. It can be so frustrating at times.

With love, Erika