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#1 | |||
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Member
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So if this one brain lesion is causing all of this, then I hate to see the pain that comes with other lesions...
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#2 | |||
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Elder
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When I was diagnosed over ten years ago there were only a few tiny spots on my brain, then later they found a tiny cervical lesion. My MS specialist said that he had seen people with one tiny symptom and their brain MRI looked like popped corn! So lesions do not always correlate with symptoms. My many early symptoms have mostly calmed down now but my MS fatigue has stayed with me. You'll get through this, and we all know how stressful it is in the beginning.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#3 | |||
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Member
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In the beginning for me I had 4 lesions in my brain and no where else. All other tests came back normal including the spinal. Over the years I would get more brain lesions, then less. My relapse in Oct of 2011 MRI showed no active lesions, but boy was I in a major relapse. You have to go by what your body is telling you, not so much those MRI's. I have a lot of lower body problems, yet MRI's show no lesions on my spine. Neuro says just because they don't show them, doesn't mean they are not there. MS is so hard to dx, its not a 1,2,3 your dx. A lot of us here took years of yes you have and then no you don't right back to yes you do. Its like a merri go round. I was dx before there were any abc's, so I was treated by symptoms. If your neuro can at least do that in the meantime for you, go for it, until you can get into the MS clinic.
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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#4 | |||
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Member
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Ok so I found out today that I'm going back to the doctor this coming up Monday. Apparently she had talked to the main doctor in the MS Clinic, and said that she wants me to see her so we can discuss some options like therapy and what not. Reason being is that the only available appointment for the MS Clinic is in Feburary, and I've already complained to them about when they made the Dec 23rd appointment. So I'm going in on this coming Monday - not really sure what to expect at this point, I hope it won't be a wasted trip, because I had to have my mom talk to them because I didn't understand why I was going back to the doctor I've been seeing.
Just hoping for the best, but I just don't know what to think right now. |
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