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-   -   New here and need help? (https://www.neurotalk.org/multiple-sclerosis/194679-help.html)

amiallison 10-21-2013 05:56 PM

Probably not but I have had no pain relief and can not take another day of nausea, headaches and feeling like I'm drunk.

yeti 10-22-2013 07:57 AM

Quote:

Originally Posted by amiallison (Post 1023628)
Well I've given it a full week and at first the nuerontin seemed to offer some hope but as the week has gone on it's clear this one isn't going to work either. Oh how I want some prednisone!

I'm on neurontin, well the generic gabapentin anyway, for trigeminal neuralgia (horrific face pain). It has worked amazingly for me, but it took nearly a full month before it started really kicking in.

And it was a VERY rough drug for me for about 2 weeks. I was basically bed ridden for 2 weeks on it. They warned me some people take time to adjust to it. Once I did, the pain is gone and I have no more side effects.

Stick with it if you can. It isn't a one-week wonder.

yeti 10-22-2013 09:07 AM

One other thing I thought about the neurontin/gabapentin. It may not be the same for you, but for me the pain started changing in character before it went away. It turned from stabbing to burning, but still hurt like hell, before it finally receded. If you're still in pain, but the pain seems to be a little different than it was (not better, just different), you might be on the road to help.

amiallison 10-22-2013 07:27 PM

The pain did change (I thought I was crazy). But it still hurt real bad-even worse than without the gabapentin. I also have the generic. The problem is (and has been) that I have to work everyday. And the first thing I do each day is move a couple hundred thousand dollars of someone elses money between various accounts so I need my wits about me.
I am still waiting for pre-certs for an MRI and X-rays of my back ( the latest dr. theory) so in the meantime I'll take my reliable prednisone and feel 100% for a short while again.

amiallison 10-23-2013 07:45 PM

I have been hurting so bad these past few days that it was making me feel like I would pass out. I found some prednisone in my drawer and took one 5mg pill this morning and now I am like a new person. Pain free, clearheaded, normal energy. What a huge difference this one med makes for me!

SallyC 10-23-2013 07:58 PM

Quote:

Originally Posted by amiallison (Post 1024327)
I have been hurting so bad these past few days that it was making me feel like I would pass out. I found some prednisone in my drawer and took one 5mg pill this morning and now I am like a new person. Pain free, clearheaded, normal energy. What a huge difference this one med makes for me!

That is so strange to me. I've never known prednizone to work
that way or that fast. I wonder what your body chemicals is
missing, that Pred. fulfills?:hug:

amiallison 10-24-2013 06:52 PM

That's the way the doctors react about the prednisone too. I swear I go from agony to well in about 2 hours after taking one 10 mg pill. And it fixes all of it-the pain, the fogginess, the total exhaustion. My primary said once that doctors believe some people run low on cortisol but there is no way to test for it and I am probably one of them. Sadly I was only able to find four 5mg pills so today I took 1/2 of one so I am only about 75%.
I really wish I could have the time to adjust to the gabapentin but I really couldn't take the pain and feeling loopy at work all day.
What I really wish is to know what is so wrong with me.

ANNagain 10-24-2013 07:35 PM

I get it now. Thank you.
ANN

KittyLady 10-25-2013 04:32 PM

Quote:

Originally Posted by amiallison (Post 1017492)
Can anyone help me please? Any ideas???? Here are most of my symptoms:
constant, moving pain and tightness in legs
burning pain in hips and lower back sometimes
weakness in legs-can't ever walk for long
lightning pains in ankles-almost all of the time
cannot stand still for any period of time
not lifting feet high enough (though I think I do) going up stairs so I trip
sitting hurts after a while and then walking hurts after a while so have to sit
tightness around ribs and shortness of breath sometimes
weak but not painful arms
hands often lose grip and I drop things a lot
dry eyes, dry mouth sometimes
can't sleep from pain because something always hurts
total, complete lethargy, feel like I have no energy at all
Doctors say there is NOTHING wrong with me-one today told me it's STRESS!!!!!!!

Hi and welcome to NueroTalk. Boy, if I had a dollar for every doc that told me "its just stress" or "its all in your head" or "there's nothing wrong with you" I'd be a VERY rich woman today. I cant sit here and tell you if you have MS or not, but the thing I can tell you is to get yourself to a MS neuro ASAP!

Only a neuro who specializes in MS can work with you on this. That was my mistake many years ago. I just saw neurologists. None who specialized in MS. I got the typical, "she has depression, there's nothing else wrong with her" and was put on anti d's and sent home.

That happened for a long time until I went to an MS neuro who did the right testing and the right MRI's WITH contrast and really looked at me and did the right kind of in office testing.
Of course your stressed. Duh!! We all are when there's something wrong and we don't know what it is, especially if we fear its MS. There's a lot of things to be ruled out first before a dx of MS can be confirmed, and a lot of things to fall into the McDonald criteria before a dx can be confirmed.

It can take a long time, or it can take no time at all. Big thing is, you need the right kind of doctor. Sorry this is so long, but you need to be steered in the right direction when you are just starting out. Be patient, don't give up, don't let them tell you its all in your head! Its a cliché, but you are your best advocate. Only you know your body, only you can speak for yourself. If the doc isn't listening to you, move on.

There's a lot of warriors here with a lot of experience and a lot of hugs to go around. Don't ever hesitate to come and talk, or vent or just need hugs. We are here for you. :grouphug:

amiallison 10-26-2013 07:28 PM

Thank you so much for that. Sadly my insurance requires referrals and until I met this last dr. (because my primary was out) nobody has really listened to me. It seems I get half through my symptoms and each dr. grabs something and yells "eureka! I've got it !" I feel now like they are just throwing meds at me so I'll be drugged and finally shut up.
I am at somewhat of a standstill again because my insurance company is not approving the MRI of my lower back. The dr. is fighting it but who knows? I don't even know if there is a ms specialist neuro that my insurance would cover. Either way I do have an appt with the primary on the 9th. I have to get some MORE bloodwork done before. I feel like someday I'll be drugged, in a wheelchair, with many holes in my arms and still no answers.
As you can tell I'm a little down these days. I feel like life is going on all around me but I don't have the fortitude to participate.


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