NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   New here and need help? (https://www.neurotalk.org/multiple-sclerosis/194679-help.html)

SallyC 10-26-2013 08:47 PM

:circlelove: ((((((Ami)))))) :circlelove:

amiallison 10-28-2013 06:33 PM

My insurance will not pay for the MRI of my back. I'll never get a diagnosis or the right medicine. I am so depressed.

Debbie D 10-31-2013 03:41 PM

That is not right...if your doctor recommends an MRI, he should be the one who determines whether or not you get one, not the insurance company.

It makes being ill so much worse...keep fighting to find out what's going on!! Do you have a teaching hospital nearby who might have a clinic that won't charge?

You seem stuck between a rock and a hard place...:grouphug:

amiallison 11-09-2013 05:05 PM

Back to the primary today. Got the referral for back X-rays, both lower lumbar and Sacroiliac. Got a lower dose of gabapentin and weekly doses of Vitamin D. Also got a referral for PT to "strenghen my core". I am to the point where I'll try anything in case I find something that brings my life back.

jnewk 11-09-2013 05:28 PM

Quote:

Originally Posted by amiallison (Post 1017492)
Can anyone help me please? Any ideas???? Here are most of my symptoms:
constant, moving pain and tightness in legs
burning pain in hips and lower back sometimes
weakness in legs-can't ever walk for long
lightning pains in ankles-almost all of the time
cannot stand still for any period of time
not lifting feet high enough (though I think I do) going up stairs so I trip
sitting hurts after a while and then walking hurts after a while so have to sit
tightness around ribs and shortness of breath sometimes
weak but not painful arms
hands often lose grip and I drop things a lot
dry eyes, dry mouth sometimes
can't sleep from pain because something always hurts
total, complete lethargy, feel like I have no energy at all
Doctors say there is NOTHING wrong with me-one today told me it's STRESS!!!!!!!

Hi ami.....when a doctor tells us "its stress" or "your fine"...its very demeaning and invalidating and frustrating. Most of us here have had that experience more than once. ALWAYS get copies/discs of tests, reports, labs, and dr notes. and keep track of them. Your symptoms could be so many things and might be more than one thing. You just have to keep going until you find a doctor who listens and takes the time to figure it out.

Good luck and keep us up to date.

amiallison 11-20-2013 08:23 PM

No Insurance now...
 
So now my medical insurance is dropping me as of 12/31. I don't know what this will do as far as which doctors I can keep.
I got my back x-ray tonight. Will know more in a couple of days.

Debbie D 11-21-2013 05:16 PM

can you COBRA?

amiallison 11-21-2013 09:15 PM

I can't COBRA because I work. And I learned this new ObamaCare rules that if your employer offers Insurance you HAVE to get it there or through an independent source. My already monthly prescriptions are so expensive that I have to get the most expensive plan at work so with the cost of that and what I NOW will have to pay for scripts I have lost $750.00 a month from my income. That leaves me way below poverty level because I am single, so one income household. The only way I may have a chance of surviving is to get on permanent disability and get food stamps, heating assistance, welfare, medicaid, etc.See how this new plan saves the government money?
The problem is still don't have a diagnosis-sigh.
I hurt all the time, I am exhausted all the time and now through nothing I did I will soon be dirt poor.

amiallison 11-21-2013 09:20 PM

Oh-and I have also a new, very strange symptom. There are these couple of muscles in my upper belly area that jump periodically. It looks and feels exactly like a baby moving. My doctor's reaction was "well we know there's no baby in there". Wow-l said looks and feels LIKE!
I am maybe crazy but have never been stupid, thank you doc.


All times are GMT -5. The time now is 02:15 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.