Oh my 10-20 years - I'd gone insane!!! Kudos to you guys then, makes my month seem not bad at all.

I still have the same problems which brought me to the nuero. Left sided numbness/tingling. I'm dealing with it but it stinks. Touching paper and clothes feels weird on my hand sensory wise-which I don't think my husband fully understands that when comming to laundry. I also think I have l'hermittes(?), I noticed that Sunday. When I look chin to chest I get a sensation done my left side which is my effected side- like a little zing. Positive note I'm a righty so that's good I guess.

Like I said I know in my gut I have it- I'm pretty good with them. I have a 5 and 6 year old. Do you tell your children? In a child friendly way, both my children have anxiety so I think explaining is better than not? I saw s'mylen on ms.org and that looked awesome.


As I was typing the doc called brain MRI this Friday night- funny when they want things done ASAP they can

Hi tj6306,

Not all of us went that long before being diagnosed I was diagnosed 28 years ago and it took 3 months for a diagnosis (PCP to Neuro to testing to diagnosis).

Lhermittes is not unique to MS, there are other causes. However, when related to MS Lhermittes is caused by lesion(s) on the cervical spinal cord. As noted you do have one lesion in that location.

Lhermittes: bending head down and experiencing abnormal sensations (vibrations/buzzing, electrical shocks). These sensations last only seconds but can be repeated each time the head is bend down.

I have had Lhermittes for 28 years and experience vibrations/buzzing from the waist down when looking down.

It only took a week for me to get my diagnosis and I was totally gobsmacked. I thought I just needed new glasses. You could have knocked me over with a feather. I'm not sure what's worse.

I was really fast between neuro appointment, to MRI to diagnosis - my kids were 5 and 8 at the time. I think you have to explain it to them (at least to some degree) because kids are incredibly perceptive and if you don't, they will start getting scared and imagine all sorts of terrible things - like that they are going to lose you.

I wouldn't drop it on them until I had a firm diagnosis, but it wouldn't hurt to say that your body isn't working quite the way you are expecting it to, and your doctor wants some pictures of your brain to work out why.

As you have already found, there are some great publications around from the MS society - and you will also get really valuable insights on here from those who have walked this path before.

Good luck with your tests, knowing what you are dealing with will make your fight (and your acceptance) much easier. But you know what else? You mentioned that your kids have anxiety - that must really be playing on your mind, but you will be amazed how resilient kids really are when the chips are down.

Hugs, and I hope all goes well and you get some answers

So I had my brain MRI and the doc called me ASAP today so he said there are some nonspecific white spots on your brain so I cant so for sure MS. If it is it is it's in it's early stages. So he wants to treat my symptoms and talk to me about where we go from here.He said he is going to give me steroids- my right hand is now tingly on my fingertips. So we will see. I will post my results from my MRI- I still think its MS but I will wait to see what he says tomorrow.


IMPRESSION: There are couple of small nonspecific right frontal T2 FLAIR white matter hyperintensities. This is not typical or pathognomonic of MS but may be consistent with the possibility. Further clinical evaluation is suggested.

Thanks again I will keep posted tomorrow!! Just keep chugging along right?!?!

Thanks TJ.

I hope you get answers tomorrow but treating symptoms until the diagnosis reveals itself is reasonable.

Best to you,
ANN

Treating the symptoms is a good idea at this point. Has your dr. run any other testing for other things that may be causing this? You may have posted that and I missed it.

Lesions can be caused by many things beside MS including migraines (which can also cause neurological symptoms). I hope that they figure this out soon for you so that you have a name to go with your symptoms. Hang in there and let us know how you are doing!