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Old 12-01-2013, 01:37 PM #1
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(((((Janet))))), what an airhead nimrod of a Neuro, you have... I'm so
glad your Niece was there at the right time to be of help to you. I don't
suppose Vegas is the place for top notch Docs, unless they're retired..

I hear you and you have every right to complain. I will pray that
things ease up for you soon. You deserve a break!!

Feel better soon..
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Old 12-01-2013, 02:27 PM #2
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I had to stop driving a few years ago.....but I did it on my own. Nobody told me or made me stop. In fact, I still have my driver's license but just keep it for identification purposes.

It's hard to stop driving. It was definitely an adjustment for me. But, my income has more than been cut in half so not having to make a car payment or insurance payment is really the only way I can make it through a month.

The doctor should have told you that she contacted the DMV. That's just common courtesy. Sorry you had to find out the way you did.
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Old 12-01-2013, 03:20 PM #3
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I'm so sorry this is happening to you.

Did you actually see the neuro at all or was everything done over the phone? IMHO, they should have done some testing such and an EEG to make sure that it was truly a seizure and not something else. Granted, from your description it sounds as if it may have been but still.... And, she contacted the DMV without concrete proof (such as an EEG) that you even had a seizure. Nor did she investigate the reasoning behind it, such as what you mentioned - medication interactions. She didn't discuss contacting the DMV with you and by that she has impacted your quality of life. I think finding a new neuro may be a good idea if you are able to do so.

I have had absence seizures before and the neuro didn't contact DMV. I was told to avoid driving for 6 months to make sure no more seizure activity occurred. If it did, then they would have to contact the DMV. I guess I was lucky that they didn't contact them.

I am glad your niece happened to come by and help you. I hope you start feeling better soon. Let us know the results of your CT scan and how you are doing.
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Old 12-01-2013, 09:50 PM #4
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I'm sorry all this happened to you, Janet. Hope you get to feeling better soon.

So, all these medical professionals are taking you at your word that you had a seizure and a concussion? That seems odd. And wrong. Is it standard procedure for people who have experienced a seizure, or simply said they did, to be reported to the DMV?
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Old 12-01-2013, 10:14 PM #5
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i'm sorry you're going thru all this.
your "neuro" should have done some tests to substantiate that you really did have a seizure, and didn't have a head injury. maybe and eeg or something.

use the ensuing time just to get her release for the dmv. then dump her.
she's awful. and, please go to the er if anything like that happens to you again.

please stay with us and keep us posted on how you are.
we're here for you.
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Old 12-02-2013, 10:46 AM #6
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Quote:
Originally Posted by NurseNancy View Post
i'm sorry you're going thru all this.
your "neuro" should have done some tests to substantiate that you really did have a seizure, and didn't have a head injury. maybe and eeg or something.

use the ensuing time just to get her release for the dmv. then dump her.
she's awful. and, please go to the er if anything like that happens to you again.

please stay with us and keep us posted on how you are.
we're here for you.
Judy

Thank you for your kind words and concern. It means so much. Im sure she did it to cover her self. No tests, exam, scans, just report. By the time I saw her I was fine (still a bit hyper/anxious but much better when I saw her). Her parting words to me when I finally saw her were "you have bigger problems than MS"....and that was the END of the appt. I have an appointment with a neuro/psych tomorrow. Lets see what he says. All I know is that I've been there for mri's, and seen dr a couple of times and they have not really told me anything. a couple lesions on brain, a couple on spine, old lesions, bla bla. But nothing except "here try this pill". I really had high hopes that this dr would work out.

But you are right, I will just do the best I can the next 3 mos and move on. Thanks so much for your concern and support.
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Old 12-02-2013, 02:07 PM #7
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Originally Posted by jnewk View Post
Nevada is a "must report" state. And I'm certain Dr did it to protect her license. She did make that decision with no tests. Just a message from me thru her assistant that I'd fainted or seized and thought I had a concussion. She did not want to order a cat scan so that is when I called primary. But by that time 1 1/2 weeks had gone by. I have to call primary dr today and see what he says.

Thanks for your questions and concern.
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Judy

Thank you for your kind words and concern. It means so much. Im sure she did it to cover her self. No tests, exam, scans, just report. By the time I saw her I was fine (still a bit hyper/anxious but much better when I saw her). Her parting words to me when I finally saw her were "you have bigger problems than MS"....and that was the END of the appt. I have an appointment with a neuro/psych tomorrow. Lets see what he says. All I know is that I've been there for mri's, and seen dr a couple of times and they have not really told me anything. a couple lesions on brain, a couple on spine, old lesions, bla bla. But nothing except "here try this pill". I really had high hopes that this dr would work out.

But you are right, I will just do the best I can the next 3 mos and move on. Thanks so much for your concern and support.
So, she made an assumption based on a message she recieved from you through her assistant. She may have been covering herself in one respect but opened herself up to a possible lawsuit (medical malpractice). What if you didn't seize but had a stroke. She didn't know that. She just assumed.

Also, telling you that you have bigger problems than MS and just leaving you hanging like that was very unkind and somewhat harmful to your emotional state. I'd be asking her what she meant by that.

I'm so, so sorry you are being treated this way. It makes me upset to hear about the medical professionals treating patients this way. I am sure that if you called the DMV and stated that you don't know if you have a seizure and that the dr just made an assumption that you did without further testing, maybe they'll work with you or something. And, maybe, like Judy mentioned, once the 3 months is up you can find a new physician that will treat you much better.

Hang in there! I'm hoping and praying that all works out well for you.
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Old 12-06-2013, 09:05 PM #8
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hi everyone

well, I did finally get a CT scan of my head....its normal. So it must've been a contradiction between the wellbutrin and my heart meds, specifically the arrhythmia drugs. I had a fainting/syncope type incident when I mixed Cymbalta with the heart drugs.

Anyway, first wellbutrin. disaster. then keppra. bigger disaster (manic like I have never experienced in my life. I was off the charts. Never have I experienced anything like that in my life). Off keppra. Then on lamictal. 2 weeks of a very low dose (25 mg) and I was more depressed ..... I was in a very deep very dark very dangerous hole. My only saving grace was that I knew it was because of the med interaction. So I'm going to "just say no" to any more antidepressants. They contradict with my heart meds. Maybe not everyone has that happen, but I did. So I'm don't with that crap. I will deal with my chronic low grade depression (dr thinks I'm BPII because my mood swing goes from depressed to less depressed).

Neuro was also unhappy that I refused tacfidera. I have pos JC virus and a 40% chance of a brain infection didn't seem like a good bet to me. She said well if you have a lot of bad luck maybe. (apparently she didn't read my file and the history etc.).

Anyway, just thought I would catch you up. Thanks so very much for you caring and support ... this has been an awful experience. And now looking for a new neuro. Or, no neuro. Honestly, I was managing my MS and other issues better with just a visit with primary dr. But I made myself go. I hadn't seen a neuro in over 5 years and some things were progressing (eyes, legs, etc.) but nothing is worth the hell I went through this last month.

janet
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Old 12-02-2013, 10:41 AM #9
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Originally Posted by Sparky10 View Post
I'm sorry all this happened to you, Janet. Hope you get to feeling better soon.

So, all these medical professionals are taking you at your word that you had a seizure and a concussion? That seems odd. And wrong. Is it standard procedure for people who have experienced a seizure, or simply said they did, to be reported to the DMV?
Nevada is a "must report" state. And I'm certain Dr did it to protect her license. She did make that decision with no tests. Just a message from me thru her assistant that I'd fainted or seized and thought I had a concussion. She did not want to order a cat scan so that is when I called primary. But by that time 1 1/2 weeks had gone by. I have to call primary dr today and see what he says.

Thanks for your questions and concern.
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Old 12-02-2013, 10:39 AM #10
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I had to stop driving a few years ago.....but I did it on my own. Nobody told me or made me stop. In fact, I still have my driver's license but just keep it for identification purposes.

It's hard to stop driving. It was definitely an adjustment for me. But, my income has more than been cut in half so not having to make a car payment or insurance payment is really the only way I can make it through a month.

The doctor should have told you that she contacted the DMV. That's just common courtesy. Sorry you had to find out the way you did.
yes Kitty...I have already given up driving at night because off "night blindness" but I know when I am able to get myself to the market or where ever. I've lost 3 members of my family to (2) different drivers that were impaired. I would never put anyone through that by driving impaired.

It is what it is at this point I guess I just have to accept it and wait it out. Then, 3 mos and I'm done with Lou Ruvo Center
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