[misshayleesmom]

HI everyone,

I just got back from the ER, the Dr. seen my spasticity an asked me why I haven't been dx yet.. that is the million $ question.

My body didn't let me down, I had a tonne of spasticity which he documented.. and my hands turned blue while I was there.. he tried to massage my foot.. he asked me if my feet turn inward and on cue it did..

So he prescribed flexural, and is getting me an appt and neuro asap.
No steroids.. he said normal wait time for a neuro is about 1 yr when a family dr refers it..

He said to call them back next week if they haven't called me.

[Kitty]

Well, you got the ball rolling. At least the doctor saw your symptoms in action.

I hope you can get in to see a Neuro sooner than a year. That seems a ridiculous amount of time to have to wait. What on earth do they consider an emergency?

[misshayleesmom]

Originally Posted by Kitty

Well, you got the ball rolling. At least the doctor saw your symptoms in action.

I hope you can get in to see a Neuro sooner than a year. That seems a ridiculous amount of time to have to wait. What on earth do they consider an emergency?

Thanks Kitty,

The problem is by the time I get an appt, get an MRI nothing ever shows up.. I think its too much time in between.. nothing is active.

My reflexes were unbelievable, none on my left side but my right leg was very exaggerated.. he asked me if my feet fan out and on cue they did.. they also turned in too.. my hands also turned blue in the office.. at least everything is documented.. so we'll see what happens next.

[Kitty]

I'm glad you got it documented.

If you have the capability maybe take a video of your symptoms at their worst or at least some pictures of your hands when they turn blue. A picture is worth a thousand words.

I hope you feel better and are able to tolerate these symptoms until you can see a Neuro. Don't these doctors realize that people are desperate by the time they finally get to have an appt?

[misshayleesmom]

Originally Posted by Kitty

I'm glad you got it documented.

If you have the capability maybe take a video of your symptoms at their worst or at least some pictures of your hands when they turn blue. A picture is worth a thousand words.

I hope you feel better and are able to tolerate these symptoms until you can see a Neuro. Don't these doctors realize that people are desperate by the time they finally get to have an appt?

Thanks,

That's a great idea, I 'll do that.

[ANNagain]

I am glad you got seen, MHM. I hope the Flexeril helps and that you get seen by the neuro very soon.

ANN

[NurseNancy]

YES! i'm so glad that all your sx's showed themselves.
keep your medical record file on yourself updated and at the ready for whenever your appt is.

if you are given the dr's phone # you might try calling frequently to see if they have a cancellation. you never know when something might open up and the squeaky wheel gets the grease.

[SallyC]

MHM, so glad that your appointment went so well. Good luck
on getting in to see the Neuro sooner.

Let us know how it's going for you.

[Snoopy]

Hi misshayleesmom, nice to see you back here.

my hands turned blue while I was there

The above quote caught my attention.

Raynaud's can cause hands/fingers and/or feet/toes to turn blue/red/white.

Information about Raynaud's Phenomenon:
http://www.cedars-sinai.edu/Patients...henomenon.aspx

[mrsD]

I'd make sure you have electrolytes checked. Calcium derangements can cause this severe cramping...called tetany.

Low Vit D levels, lead to low calcium. Also low magnesium will do this.

There can be a tumor on the parathyroid glands, and this will cause severe spasms too. Tapping the side of the face... near the ear will cause spasms on that side of the face when calcium levels are too low.

http://en.wikipedia.org/wiki/Chvostek_sign
images:
https://www.google.com/search?q=chvo...iw=981&bih=662

http://www.bmj.com/content/336/7656/1298