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Old 01-13-2014, 06:10 PM #11
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We have had some recent young men on our MG forum with MG.

I personally think it comes from vaccines...but that is just my opinion.

If you live in a dorm, Johnny, you have to be very careful what you eat. Dorm food is terrible. My son went to an big ten school, and he was always sick there in the dorm. In his 3rd year he moved out and cooked his own food and things were much much better.

You should visit our MG forum here. Some of the young men have stopped posting, but you can ask and then search them.
One that comes to mind is this person:
http://neurotalk.psychcentral.com/member.php?u=20833

Males typically develop MG later than females...but that seems to be changing...and may be due to the vaccine burden all students are put to.
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Last edited by mrsD; 01-14-2014 at 03:43 AM. Reason: Fixing grammar
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Old 01-13-2014, 06:12 PM #12
JohnnyAppleSeed JohnnyAppleSeed is offline
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Just to update, getting an MRI tomorrow, and he's going to evaluate it really soon, and I'm going to have another appointment. I'm still sticking to my thoughts that something is off in some way. Just a few nights ago I had a moment where my whole body all of a sudden felt really weak, and my right hand was shaking, yet I was totally calm. I was eating cereal, and my hand was shaking so much, the spoon would have went flying if I had let go.

Also, today in class, I had a new symptom. In my left foot, out of nowhere, I got this feel of like needles, or knifes exploding, it felt itchy and slightly burned. It REALLY hurt, and came in waves the last like 20-30 seconds, and happened three times in a row and went away. I also am now getting the muscle twitching in my foot, which I have never gotten before. So odd, whatever is going on It seems like I keep developing new symptoms .

The thing that never seems to go away though is that head pulling feeling, and how something feels like it's in my throat, and it's VERY annoying. Like It's like sometimes my neck feels like it's not relaxing, and the next hour, it's a lot more relaxed. This is all so discouraging, and I wish this was all anxiety but it's not. That pain today in class hurt so bad, I had to go walk to the bathroom in the middle of class
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Old 01-13-2014, 06:14 PM #13
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Question

What are you doing in school? What courses do you take?

Is there something you are exposed to, inhale etc that could be doing this?
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Old 01-13-2014, 07:42 PM #14
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Quote:
Originally Posted by JohnnyAppleSeed View Post
strizzlow20 -

Thanks for the reply.. That's horrible you were diagnosed with that at such a young age, that's pretty uncommon. I don't think that's something I would have, but you saying you had so many similar symptoms concerns me, because I have a first-degree aunt with MG, and she's not doing to well. Are you a male or female, just curious.
I'm a male. I was extremely active my entire life and athletic. Football, wrestling, softball, and volleyball. I love being outdoors. The reason MG, I think was overlooked, is because not only is it so rare (so they say) but I didn't hit the normal age group ( I started with symptoms around (21). Women usually get it my age. Now something to go alone with Mrs D and her vaccine comment, I not only think that's a contribution, but it's also the chemicals and hormones used in our food/water that I think cause some of these conditions to activate. I never had any issue until I moved to Florida from New England, so perhaps there was an environmental change. I think it was exposure to mold down here. Who knows though, I'm sure there is some genetic disposition. I don't want to make this thread about me, but I'll be happy to let you know what I've done, who I saw, and what it took to get a diagnosis for atleast the MG. I'm still in limbo with MS and my neuro thinks I may have atypical MS, but nothing diagnostic to prove it, only symptoms. MG can cause some pain in my opinion because of weakened muscles and I even have heard from other patients and see in articles that we have tiny muscles in our ears that can be effected, causing symptoms such as hyperacusis. Of course I am no physician and I'm not qualified to DX, but I'm happy to share my experiences. Get the blood test for it, it couldn't hurt. Gd luck with your other testing, there are wonderful people on Neurotalk.
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Old 01-13-2014, 07:47 PM #15
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So sorry JA. Let us know what your MRI shows and take care.
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Old 01-26-2014, 07:54 AM #16
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Everything came back clean. Thank you so much for all the replies. I moved over the a more non-specific forum in meantime as symptoms are still going on ( with new ones )
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