Reply
 
Thread Tools Display Modes
Old 01-06-2014, 09:59 PM #1
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default Unresponsive bowel?

Urgh... I can't make this question pretty even if I tried.

Basically... what began as constipation, has 'evolved' into something much more. I figured taking stool softener would help, so I took the dose on the bottle for a lengthy period of time. Wasn't helping me to 'go' (I was 5 days or more before I would go), so my GP suggested that I take double the amount.

So now, I take 4 gel caps (Stool softener) daily... and fit them in 2 hours after and before my other medications. I drink tons of water as well.

The problem is... while I don't have the hard stool anymore, I just don't go! The only ways I can go?

1. Get 'overfull' and it's like opening a tap (after several days).
2. Laxatives (which I really really try to avoid).

It feels like my colon just doesn't move things along. If this makes any sense? There's no urgency until 5-10 minutes prior to having to pass a large amount.

There's no discomfort, or pain. In fact, I feel NOTHING until it's time to go to the loo.

When I do have to go (that 5-10 minute window), that's the only time I feel discomfort, or 'spasming'.

Anyone else understand this? Any advice? I've been complaining to my GP for 3 years at least now about this. I've even had an endoscopy and colonoscopy (both checked out), been tested for Gluten intolerance/celiac etc etc... everything's okay there.

I'm at my wit's end here.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (01-07-2014), Erika (01-06-2014), Kitty (01-07-2014), Mariel (01-07-2014), SallyC (01-06-2014)
Old 01-06-2014, 10:22 PM #2
Erika Erika is offline
Senior Member
 
Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
Erika Erika is offline
Senior Member
 
Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
Default

Hmmm...it could be autonomic neuropathy affecting the branch of the vagus nerve that goes to the colon. That can slow things down like that.

With love, Erika
Erika is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (01-07-2014), Kitty (01-07-2014), Mariel (01-07-2014), SallyC (01-06-2014)
Old 01-06-2014, 10:37 PM #3
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

I eat lots of fiber, fruits and veggies. In the winter I cook kale or collards and those both help. These are not only good for you but can help to keep things moving along.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (01-07-2014), Erika (01-06-2014), Kitty (01-07-2014), Mariel (01-07-2014), SallyC (01-06-2014)
Old 01-06-2014, 11:30 PM #4
tnthomas's Avatar
tnthomas tnthomas is offline
Member
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
tnthomas tnthomas is offline
Member
tnthomas's Avatar
 
Join Date: Oct 2011
Location: High Desert, Calif.
Posts: 160
10 yr Member
Default

Quote:
Originally Posted by ewizabeth View Post
I eat lots of fiber, fruits and veggies. In the winter I cook kale or collards and those both help. These are not only good for you but can help to keep things moving along.
+1 for greens!

Since I take 2 different SSRI meds, 'going' regularly can be a challenge. If lotsa water and bran buds don't do the trick- I break out the collard greens, plus the turnip and/or mustard tops.

I don't like stool softeners, not sure I can describe why, except that the feeling doesn't seem natural.
tnthomas is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (01-07-2014), Erika (01-07-2014), ewizabeth (01-07-2014), Kitty (01-07-2014), Mariel (01-07-2014), SallyC (01-07-2014)
Old 01-07-2014, 08:56 AM #5
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

It really sounds like an "MS thing". I haven't had this particular symptom (yet) but I have heard about it and MS does effect the nerves that regulate that bodily function.

Do you have a Neuro that you see for MS? I would let them know and see what they suggest. A GP will probably suggest the typical laxatives but if it's MS related a Neuro will probably know more about what to do.

I'm sorry you're having this problem but I am glad to see you posting again!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (01-07-2014), Erika (01-07-2014), ewizabeth (01-07-2014), Mariel (01-07-2014), SallyC (01-07-2014)
Old 01-07-2014, 03:37 PM #6
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Thanks for the tips folks. I eat LOADS of vegetables (and a small mountain of spinach daily along with the rest). I know I'm getting plenty of fibre that route and for a while, focused on upping, and then balancing, fibre in my diet.

Kitty, great to hear from you too! <3 I've been a busy gal, lol I too think this could be an MS thing. I do have a regular neurologist, however getting in to see him is quite another story. Our health care system (Canada) can be great, but then something like this comes along and suddenly the govy doesn't want to pay for, or allow for, a visit to see the neuro.

If things resolve/I find something that helps, I'll be sure to report back. For now, day 4 and other than a loud (gurgly) stomach, nothing's moving otherwise lol. Thanks again all.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (01-14-2014), Erika (01-07-2014), ewizabeth (01-07-2014), Kitty (01-07-2014), missj (01-08-2014)
Old 01-25-2014, 07:55 PM #7
poochie poochie is offline
Member
 
Join Date: Jan 2009
Posts: 129
15 yr Member
poochie poochie is offline
Member
 
Join Date: Jan 2009
Posts: 129
15 yr Member
Default

I have a terrible time going to the BR, but I have found this recipe that helps me a lot............

1 cup oatmeal (quick cook)
1/2 cup chocolate chips
1/2 cup chunky peanut butter
1/2 cup Bob's Red Mill whole ground flaxseed meal
1/3 cup honey
1 tsp. vanilla

Mix together, will be very thick, roll into about 1 inch balls and refrigerate. Eat anytime you want. I usually have 3 or 4 daily.
Bobs flaxseed I buy from the health food store, there is others but I found this is the best. And it has to be refrigerated. I also take 2 senna's about 3 times a week.
The protein balls do cause some gas but when you have a problem like this it doesn't matter.
poochie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (01-29-2014), Erika (01-25-2014), SallyC (01-25-2014)
Old 01-26-2014, 12:28 PM #8
missj missj is offline
n/a
 
Join Date: Aug 2010
Posts: 255
10 yr Member
missj missj is offline
n/a
 
Join Date: Aug 2010
Posts: 255
10 yr Member
Default

for me its not the make or the model of the car in the garage, it's that the garage door opener is broken! Manually opening it is the only way to 'go'
missj is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (01-29-2014), Erika (01-27-2014), SallyC (01-26-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Bowel obstruction bronwyn New Member Introductions 2 07-26-2012 01:06 AM
Bowel issues? nancymarie Multiple Sclerosis 10 07-28-2011 01:42 PM
Please help my unresponsive mom with normal MRI's and CAT scans. Meshelle General Health Conditions & Rare Disorders 2 07-17-2010 10:06 PM


All times are GMT -5. The time now is 03:52 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.