Showing some troubling signs

mrsD · 01-11-2014, 05:25 PM

Quote:

Originally Posted by JohnnyAppleSeed

Thank you for the responses. I have gone to a doctor and he wants to get an MRI of my brain. He told me if it's major, then he suspects possible MS. If not, he said we will take it from there. It's just really frustrating to me, when you have all of these neurological symptoms going off, that really interfere with your life. I'm at the end of my last year in college going strong, but now it feels like a brick got dropped on me, and that my concentration has decayed. I guess this is one of the most annoying parts to anything, being in pain and discomfort and you have no idea why. I seem to show a lot of MS signs, yet at the same time, I seem to show signs that aren't very related to MS, and I never have had blurred vision or double vision, which are hallmark ms signs. So confusing

. I will keep you guy updated, as I get the scan Monday, but in the meantime, I'm going to try stretching, exercising, eating well, sleeping well, and keeping my stress to an all time low in the meantime. Also I want to mention, which I didn't before. I have had accident in the past, when I was 20 I had two occasions where I hit my head, one was when I swung my head back, and slammed it into a thick concrete wall, and the other time I ran straight into a metal pole which cut my forehead open a bit. I also recently fell down a concrete staircase like a month ago, but I didn't hit my head, landed on my butt and back. So makes also wonder if I did something in that regards. I also got a mild emg test done on my spine, and it showed like half the nerves of my back and neck were in the sever stressed range. How I feel now

We have a Traumatic Brain Injury forum here.

http://neurotalk.psychcentral.com/forum92.html

They are very experienced and helpful regarding concussive injury and the symptoms that arise with that. I do hope you told your doctor about your head injuries in the past, as well.

What is a mild EMG? EMG will show conductivity problems where there is nerve damage.

Do you live in a dorm at school?

strizzlow20 · 01-13-2014, 01:26 PM

Well, I'm really sorry for what you're going through. I am going to post the three things below that I have and can relate to:

First off, my vision, for about two months, I was noticing my vision was weird, like things would slightly move, or I would lose track what I was looking at.

Getting lots of pain inside my ears every once in a while, and a couple of times my hearing would go away, and just hear ringing for 5 seconds, then the hearing comes back. I have times where I feel tingling like in my toes, foot or legs, almost like ants burst out of their antpile, and this only happens briefly, like 20 seconds. I also have times, where I feel this tingling ticklish buzz that goes off in my legs, only lasts like 3-5 seconds with no pain. It almost feels like its moving upwards to my thighs, like painless electricity.

mention is that stomach pain I talked about earlier, came back a year later around a week ago, and I now sometimes feel throbbing pain on my lower right side of stomach, whatever that might mean. I also have a ton of muscle twitches all the time, mainly in my thighs, and calfes and strangely in my head.

Now in a nutshell, I've had a TON of testing that I will be happy to go over in a private message with you. 3 MRIs as of April to give you an idea. The only thing testing wise that I have problems with are VENG (eye tracking test), Periodic Limb Movement Disorder based on sleep study, and I have Myasthenia Gravis. I had a ton of stomach pain a year and half ago that was so bad, I would sweat. I had my gallbladder removed but I still have periodic issues where I feel like a giant gas bubble is in my chest and it's hard to breathe. I am also being tested for small fiber neuropathy due to the pain in my arms in legs. I'm sorry man that you're going through this. I'm only 27, but was DX with MG in 2008.

One last thing, I was tested for MG (which was originally suspected as MS) because of throat and tongue problems. I felt like my throat was kind of collapsing or something was stuck. My tongue would also feel number to me, which is actually weakness instead. These can be caused by anxiety, which is what I was also told it was until the MG antibody test came back positive. I started with bulbar issues.

JohnnyAppleSeed · 01-13-2014, 05:54 PM

MRS. D -

Hey, thanks for the response. I did let my doctor know, and he said that he's going to definitely keep that in mind. He wants to get a scan of my head first to rule out many things. He said the main thing he's concerned about is possible MS. I would get a MRI of my spine too, but it's so much money.. I can't afford it.. Yes, I do live at a dorm in school, have been the last 3 years.

JohnnyAppleSeed · 01-13-2014, 05:56 PM

strizzlow20 -

Thanks for the reply.. That's horrible you were diagnosed with that at such a young age, that's pretty uncommon. I don't think that's something I would have, but you saying you had so many similar symptoms concerns me, because I have a first-degree aunt with MG, and she's not doing to well. Are you a male or female, just curious.

mrsD · 01-13-2014, 06:10 PM

We have had some recent young men on our MG forum with MG.

I personally think it comes from vaccines...but that is just my opinion.

If you live in a dorm, Johnny, you have to be very careful what you eat. Dorm food is terrible. My son went to an big ten school, and he was always sick there in the dorm. In his 3rd year he moved out and cooked his own food and things were much much better.

You should visit our MG forum here. Some of the young men have stopped posting, but you can ask and then search them.
One that comes to mind is this person:
http://neurotalk.psychcentral.com/member.php?u=20833

Males typically develop MG later than females...but that seems to be changing...and may be due to the vaccine burden all students are put to.

JohnnyAppleSeed · 01-13-2014, 06:12 PM

Just to update, getting an MRI tomorrow, and he's going to evaluate it really soon, and I'm going to have another appointment. I'm still sticking to my thoughts that something is off in some way. Just a few nights ago I had a moment where my whole body all of a sudden felt really weak, and my right hand was shaking, yet I was totally calm. I was eating cereal, and my hand was shaking so much, the spoon would have went flying if I had let go.

Also, today in class, I had a new symptom. In my left foot, out of nowhere, I got this feel of like needles, or knifes exploding, it felt itchy and slightly burned. It REALLY hurt, and came in waves the last like 20-30 seconds, and happened three times in a row and went away. I also am now getting the muscle twitching in my foot, which I have never gotten before. So odd, whatever is going on It seems like I keep developing new symptoms

.

The thing that never seems to go away though is that head pulling feeling, and how something feels like it's in my throat, and it's VERY annoying. Like It's like sometimes my neck feels like it's not relaxing, and the next hour, it's a lot more relaxed. This is all so discouraging, and I wish this was all anxiety but it's not. That pain today in class hurt so bad, I had to go walk to the bathroom in the middle of class

mrsD · 01-13-2014, 06:14 PM

What are you doing in school? What courses do you take?

Is there something you are exposed to, inhale etc that could be doing this?

SallyC · 01-13-2014, 07:47 PM

So sorry JA.

Let us know what your MRI shows and take care.

strizzlow20 · 01-13-2014, 07:42 PM

Quote:

Originally Posted by JohnnyAppleSeed

strizzlow20 -

Thanks for the reply.. That's horrible you were diagnosed with that at such a young age, that's pretty uncommon. I don't think that's something I would have, but you saying you had so many similar symptoms concerns me, because I have a first-degree aunt with MG, and she's not doing to well. Are you a male or female, just curious.

I'm a male. I was extremely active my entire life and athletic. Football, wrestling, softball, and volleyball. I love being outdoors. The reason MG, I think was overlooked, is because not only is it so rare (so they say) but I didn't hit the normal age group ( I started with symptoms around (21). Women usually get it my age. Now something to go alone with Mrs D and her vaccine comment, I not only think that's a contribution, but it's also the chemicals and hormones used in our food/water that I think cause some of these conditions to activate. I never had any issue until I moved to Florida from New England, so perhaps there was an environmental change. I think it was exposure to mold down here. Who knows though, I'm sure there is some genetic disposition. I don't want to make this thread about me, but I'll be happy to let you know what I've done, who I saw, and what it took to get a diagnosis for atleast the MG. I'm still in limbo with MS and my neuro thinks I may have atypical MS, but nothing diagnostic to prove it, only symptoms. MG can cause some pain in my opinion because of weakened muscles and I even have heard from other patients and see in articles that we have tiny muscles in our ears that can be effected, causing symptoms such as hyperacusis. Of course I am no physician and I'm not qualified to DX, but I'm happy to share my experiences. Get the blood test for it, it couldn't hurt. Gd luck with your other testing, there are wonderful people on Neurotalk.

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