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#1 | |||
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Junior Member
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Doydie, you have inverse psoriasis, that happens in the folds of skin mostly. I have had this for 21 years now. For 4 years back in the 90's I could barely walk, the bottom of my feet were covered with hundreds of tiny blisters, and also my palms and finger tips. I lost almost all of my finger nails and my big toe nails, it was horrible.
Be careful some drugs can make it worse, do your research, doctors don't. They tried to put me on Beta blockers, and that can make it worse, so they switched it to calcium channel blockers. Hi Teddy! I tried the UBV treatment, it didn't help. PUVA, tar, Tegison, just about everything, nothing the doc's did helped, only the hormone replacement helped. And only natural sunlight or a tanning bed helped, there little light treatments never did a thing, I think it might have been weaker. Right now it's not too bad at all, could it be the LDN? I wonder. I know it has all but taken away the IBS, and I haven't had a severe attack of whatever, (since I don't have a dx yet). The day I went to the hospital and found out I have numberous lesions, I was looking on line abut psoriasis and read that you have a 4 times higher chance of having MS with psoriasis. At that time I didn't have a clue what MS was, it was strange that later that day the hospital was telling me that I could very well have MS. Pat |
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#2 | ||
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Junior Member
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This subject is new to me, but I seem to have developed Psoriasis too.
Not nearly as drastic as for several of you, but very annoying. I have several spots that itch terribly for a while, that I claw at til I draw blood. I have had some limited success with Benadryl liqiud (topical) and the over-the-counter hydrocortizone creams. Just slows the itch a bit. Oddly, the symptoms will suddenly disappear for a while, and return weeks or months later. More weird autoimmune stuff? It never seems to end! ![]() Interesting that the sunlight helps some...I haven't documented occurances to see if that is what changes things for me. Probably should. |
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#3 | |||
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In Remembrance
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They say Misery loves company, but in this case, I'm sorry y'all have joined me.
Pals, your's sound especially nasty. I think I have the same kind as you have, but not quite as bad..yet.. ![]() Kami, sorry to hear that you may be joining the group. Hi Teddy, nice to see you. Thanks for checking in and giving me the benefit of your knowledge on this rat's ***** disease. Wow, DaisyM...WELTS when someone rubs against you...sheesh, that's awful. I'm so sorry. Doydie, yes, they say you casn have different types of Psoriasis in different areas of your body. Isn't that fun...NOT. Thanks Judy and AMN for your well wishes and support. This damn diseases (MS and Whatever) suck gravel. Fighting it all together makes it seem a little less scary, though. Thanks All ![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#4 | |||
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Junior Member
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Sally, it's not that bad right now, I am in a pretty good phase. I don't ever want to be as bad as I was, it was horrible. I flares and subsides now, for many years it didn't even do that.
Pat |
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#5 | |||
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Member
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Oh Dear Sally,
What a bloody mess! I'm so sorry to hear of your latest troubles. It does seem like one thing after another at times, doesn't it? I know that in terribly active cases I've seen them use IV Methotrexate, but it doesn't sound as if you are that bad. (Just bad enough that it doesn't seem fair!) I'm always thinking of you, and I think you've been given some good advice. Keep your chin up, and keep that lovely smile of yours on that lovely face. I need to see your smile when I sign in. Here's to feeling better. All the best, Chris |
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