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Old 04-17-2014, 03:18 PM #13
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NurseNancy NurseNancy is offline
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Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
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please don't give up. you shouldn't have to live in pain.
it doesn't matter if it's MS pain or not. pain is pain and it's real to the person that's having it.

when my pain was getting bad and interfering with my quality of life i made an appt with my pcp. she knows me. i told her how i feel. even my pain dr was getting in a routine rut with my appts. seemed to be just herding me thru the appt and giving me my refill without really listening to me, even tho i tried to tell them.

when my dr summarized my complaints in a very articulate way i offhandedly said "i should bring you with me to my appt". she ended up sending my pain dr a letter summarizing my situation and i was well received my next appt.

maybe something like that may be helpful. don't give up. you are still your own best advocate. sometimes we have to take a step back, think and regroup. then try again.
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You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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