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#1 | |||
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Elder
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It was fatigue that sent me looking for a cause over ten years ago. It's been with me ever since, waxing and waning. Up until a few months ago, though, it's a feeling of overall/brain fatigue, but not really sleepiness. Even when I felt fatigue such that I didn't think I could turn my head, too tired to think straight, I didn't feel drowsy during the day.
Lately it's hard to get through the day without a nap. It could be medications, I suppose. It could be age (my daughter, bless her heart, told me "most people your age need naps"--I'm almost 64! No, they don't). If it's indeed part of the MS, I'm hoping this symptom will also go into remission, even if temporarily. I get precious little accomplished during the day anyway, without subtract a couple hours for the three phases of napping: winding down, actually sleeping, pulling it back together. Anybody else have a few weeks/months of being sleepy all the time and "recovered" from it? Or is this another stupid new normal to get used to?
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#2 | |||
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In Remembrance
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For me, it's a new normal, since I became 69.
![]() of my "brain fatigue", but not my aging nappiness. ![]() Welcome to my club, Blessings. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#3 | ||
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Senior Member
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If I don't take Modafinal (Provigil), this body goes into a sleep phase within minutes of not moving. I've had spoons fall from my grasp mid-meal, books fall to the floor and have been jarred awake at the computer by my chin hitting my chest.
The neuro said that it wasn't narcolepsy (according to the EEG) and was likely an extreme form of MS related fatigue. If it becomes a problem, you might ask about Modafinal. With love, Erika |
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#4 | ||
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Senior Member
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Blessings, I just turned 64 and I need naps now and then and sleep in late in the morning.
Oh, and I have MS, too! ANN |
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"Thanks for this!" says: | Blessings2You (04-24-2014), dmplaura (04-25-2014), Erika (04-24-2014), ewizabeth (04-24-2014), SallyC (04-24-2014) |
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#5 | |||
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Member
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I was 51 when this hit and used to working 10-15 hours a day on a truck dock and driving, fatigue became the new normal right from the start.
I am TheSleeper! ![]()
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ditched the witch . |
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#6 | |||
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Wise Elder
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I've needed naps right from the beginning; sometimes, 2 naps a day.
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"Thanks for this!" says: | Blessings2You (04-25-2014), dmplaura (04-25-2014), Erika (04-25-2014), SallyC (04-25-2014), TheSleeper (04-27-2014) |
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#7 | ||
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Junior Member
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I'm 23 and I had that happen to me last week... I spoke with my doc and he said it's because of stress.. Have a cup of Kale juice everyday! apparently it helps
Hope you feel better soon ! ![]() C. |
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#8 | |||
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Magnate
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The last year or maybe a bit more, I get extreme fatigue where I have to nap, or flat out pass out for hours.
I find myself very confused and disoriented. I told my employer (very sympathetic) that I'm having cognitive issues now with my M.S., which I think isn't so much the case, as extreme fatigue causing it. Though who knows? The other day I was out with my parents at a coffee shop (having a tea, I don't do coffee anymore) and mid-sentence my mom (who gets excited very easily and often adds her 2 cents in) offered up some input, which completely confused me and I sat there starring like a zombie at my dad with my mouth hanging open, sputtering and trying to think of what it was I was just talking about... then mom tries to "jog my memory" which actually, for me when I'm trying to recall my train of thought, is a detriment and doesn't work! Good intentions gone wrong lol. ![]() Got home from the time out at the coffee shop (I mean, come on.. I was sitting around just having a tea, not out at a mall shopping which saps my energy or anything, a simple drink!) and I crashed out. For hours. I can't even recall what we were talking about. I'm only 37, but I have to nap. Usually daily. Rare do I have a day that I have enough energy to get through the day without a nap. Oh, and the worst - shopping. Which hubby and I tend to do now more in short trips than longer ones hitting up multiple stores, because he knows it drains me horribly.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#9 | ||
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Senior Member
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Its terrible when it hits both the body and the mind like that, isn't it? The body seems to become a wet dish rag and the mind goes off into la-la land.
Stupid disease. With love, Erika |
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