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Old 05-13-2014, 10:03 PM #1
Mariel Mariel is offline
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Mariel Mariel is offline
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It seems you are not being well informed about MS and its various manifestations. I read a few books on it from the library not too long after diagnosis. One of the valuable books was by Roy Swank MD. I can't remember whether his first comprehensive book was called "The MS Diet Book" or if that was the second one...I don't have the books because a forest fire in 2000 destroyed my library, which was filled with toxic smoke so that no one could even touch the books without gloves.

Dr. Swank not only recommends a diet for MS, but he explains WHY he recommends it, and what saturated fat does to exacerbate MS, in his opinion. He discusses MS as a worldwide phenomenon, where it is prominent, where not, and what periods of time made it less prominent (WWII when there was less fat in the diet, MS less prominent).
He describes how the damage is done to the myelin sheath.
You need to get a variety of reading materials, if your eyes will take this, and see the various effects and symptoms. If you can't read a book easily, there are books on tapes for many different subjects at the library.
It seems your Neuro is not the type who fills in the information so you can understand well. She does not think you need to understand in order for good care to occur, but you are having further symptoms which probably should be looked at, and they are not necessarily "just" due to depression. A person can be depressed about her condition and her life and still have physical manifestation.
I cannot take ANY anti-depressant because of having another ailment, Porphyria, in which some drugs cannot be taken.
I was told to just go out and live my life, symptoms and all, at your age. I muddled through, sometimes muddling well, but I would have done better with knowledge! Possibly much much better, and my relatives would have suffered less, too.

It is hard to live without a pill when one is depressed, and sometimes I really wish I could take one, but there are also advantages to going without anti-depressants. You may have a clearer mind because of this. But of course you may be more miserable, so it's a hard battle.
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happycowsfromwyo (05-15-2014), SallyC (05-14-2014)
Old 05-15-2014, 06:47 AM #2
happycowsfromwyo happycowsfromwyo is offline
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happycowsfromwyo happycowsfromwyo is offline
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Quote:
Originally Posted by Mariel View Post
It seems you are not being well informed about MS and its various manifestations. I read a few books on it from the library not too long after diagnosis. One of the valuable books was by Roy Swank MD. I can't remember whether his first comprehensive book was called "The MS Diet Book" or if that was the second one...I don't have the books because a forest fire in 2000 destroyed my library, which was filled with toxic smoke so that no one could even touch the books without gloves.

Dr. Swank not only recommends a diet for MS, but he explains WHY he recommends it, and what saturated fat does to exacerbate MS, in his opinion. He discusses MS as a worldwide phenomenon, where it is prominent, where not, and what periods of time made it less prominent (WWII when there was less fat in the diet, MS less prominent).
He describes how the damage is done to the myelin sheath.
You need to get a variety of reading materials, if your eyes will take this, and see the various effects and symptoms. If you can't read a book easily, there are books on tapes for many different subjects at the library.
It seems your Neuro is not the type who fills in the information so you can understand well. She does not think you need to understand in order for good care to occur, but you are having further symptoms which probably should be looked at, and they are not necessarily "just" due to depression. A person can be depressed about her condition and her life and still have physical manifestation.
I cannot take ANY anti-depressant because of having another ailment, Porphyria, in which some drugs cannot be taken.
I was told to just go out and live my life, symptoms and all, at your age. I muddled through, sometimes muddling well, but I would have done better with knowledge! Possibly much much better, and my relatives would have suffered less, too.

It is hard to live without a pill when one is depressed, and sometimes I really wish I could take one, but there are also advantages to going without anti-depressants. You may have a clearer mind because of this. But of course you may be more miserable, so it's a hard battle.
They've just released to the market a new anti-depressant that's natural and packed with a bunch of vitamins/minerals. It's called Enlyte. So far, it's been the best anti-depressant I've been on. It has B1, 2, 3, 6 and 12 in it. Along with a few folic acid like stuff in it. I will look into getting some books from the library and seeing if I can read them. I haven't been able to read books for a long time now. I don't know if it's my anxiety or what, but I just get too fidgety and have a constant need to do stuff with my hands.
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