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Old 05-30-2014, 10:11 AM #11
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Quote:
Originally Posted by SallyC View Post
I had a myliogram/LP on a tilt table a long time ago-1975, by a Neuro/Surgeon
and received a MS DX. They didn't do MRIs way back then. They were looking to
eliminate brain tumors

Is that what you are having?
Let us know how is goes for you and Take Care.
Thanks Sally! I have symptoms with my heart and syncope that could be neurologic I guess. I don't know .... the number of dr's and tests trying to figure out what happened in Nov when I went thru those awful weeks and months of concussion and bad meds (along w/an incompetent dr). So hopefully I can get some answers. I will let you know. Thanks so much for caring. your presence here on this board is always a great comfort.
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Old 05-30-2014, 11:25 AM #12
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If you're going to pass out, it's a good place to have it occur. They are watching to see if your heart rate and blood pressure plummet when in different positions.

My late MIL had this problem. They installed a pacemaker, and she didn't have another episode until Alzheimer's messed with her brain, interrupting signals that covered basic functions
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Old 05-31-2014, 01:51 AM #13
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I had one in 2008 as well, that's how I was diagnosed with POTS.

If you do pass out you are strapped to the bed so you won't fall and they are right there.

Hope the test helps you get some answers!
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Old 05-31-2014, 10:01 PM #14
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Janet I would think if you had an episode of vasal vagal syncope during the test you might pass out, have a pretty low blood pressure and heart rate. Good luck, when is it scheduled?
Thanks Doydie....its scheduled for a couple of weeks from now. I'm feeling less anxious about it now that everyone here has weighed in and it will be what it will be.

Thanks so much
janet
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Old 06-01-2014, 12:16 PM #15
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Tilt table was part of therapy after laying flat in bed for 6 months after complete C7 spinal cord injury. Lay down for too long you'll pass right out even if you just sit up. Had to wear teds & stomach binder to keep blood psi up. Every day they'd increase angle, i'd just hang out there with walkman on. Ditched all that stuff a yr after I was released in 1990.

Also being paralyzed from chest down, my bod can't regulate blood psi/vessel size on most of my bod so I have to take Prazosin which stabilizes, keeps bp spikes from happening but lowers bp as side effect. My norm is 90/60 give/take.
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Old 06-02-2014, 05:47 PM #16
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Tilt table was part of therapy after laying flat in bed for 6 months after complete C7 spinal cord injury. Lay down for too long you'll pass right out even if you just sit up. Had to wear teds & stomach binder to keep blood psi up. Every day they'd increase angle, i'd just hang out there with walkman on. Ditched all that stuff a yr after I was released in 1990.

Also being paralyzed from chest down, my bod can't regulate blood psi/vessel size on most of my bod so I have to take Prazosin which stabilizes, keeps bp spikes from happening but lowers bp as side effect. My norm is 90/60 give/take.
Oh my Eddie..... you've been thru so much. Thank you for sharing your experience with me. I can't imagine how difficult it must be for you. I hate having low b/p. feels lousy. of course, having high b/p is also not good lol.
Now that I've heard from you and others on this board I feel better just kindof knowing what to expect.... thanks again.
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Old 06-05-2014, 10:27 AM #17
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I have an autonomic disorder (along with MS) which causes me to get dizzy & pass out too.

In case nobody told you- they don't stand you bolt upright really fast during a TTT, it really was a rather boring slow movement. I thought- "this is useless, its not going to show squat, just a waste of money" Then bam- symptoms hit and I puked, sweated wildy and passed out which was new to me. Woke to nurse telling me they were able to confirm diagnosis and MD would explain course of treatment in a few moments.
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Old 06-05-2014, 10:55 AM #18
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I don't think I like that test, Jane.
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Old 06-05-2014, 11:19 AM #19
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I have not had one done, but wanted to wish you luck on your testing. I'm glad others have chimed in regarding their experience.
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Old 06-05-2014, 02:07 PM #20
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Thanks Jane...that's kindof what I am anticipating. I know I shouldn't "project into the future" however I do like having a clue as to what to expect. I really appreciate the clarity with which you described your experience - lol truthfully I do! )))

I have a couple of weeks of nothing but tests more tests and doctors. But gettin' it done.

I will let you all know how it goes - its not til the 17th....

janet

Quote:
Originally Posted by jprinz99 View Post
I have an autonomic disorder (along with MS) which causes me to get dizzy & pass out too.

In case nobody told you- they don't stand you bolt upright really fast during a TTT, it really was a rather boring slow movement. I thought- "this is useless, its not going to show squat, just a waste of money" Then bam- symptoms hit and I puked, sweated wildy and passed out which was new to me. Woke to nurse telling me they were able to confirm diagnosis and MD would explain course of treatment in a few moments.
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