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I'm still really sore, but the swimming last night and large doses of ibuprofen seem to have loosened up my muscles so I can walk normally now. The last week and a half, my hips have tightened up/collapsed halfway through my stride making it hard to even use a walker. The doctor from Mayo told me to do the exercises they taught me, but I found it impossible since my hip mobility was normal in front of me, but nil behind me so I couldn't complete the movements. I even tried doing the things that conversion syndrome Websites suggested, like singing while you walk, which is supposed to change your gait pattern by letting automatic processes take over while you think about something else. The results were that I fell because my automatic processes weren't doing any better than me. Its strange that it took another patient to tell me that if I can't walk, I should swim and then try again. A doctor telling me this a week ago could have saved me a lot of trouble. I actually do believe conversion syndrome is real, I just don't see how it can cause the array of symptoms I have, like the heart issues. And I'm afraid I can't use Mayo now for a couple reasons. Now that they've dx'd me with it, I'm afraid its going to be their go to cause for everything. Also the doctor wants to take me off benzos. The dose I'm on now allowed me to continue working because my muscle tightness/spasms were too painful to sit at my desk. The original dose prevented Myoclonus that came with uncomfortable electric shock sensations. While I don't like the mental fog from the benzos, I don't want to go back to being shocked randomly through my day. I'll talk to the Mayo doctor about this when she calls back Incidentally, when the myoclonus was at its worst, I did develop jerks that didn't shock me and in hindsight I think that these may have been a conversion type reaction to the actual myoclonic jerks. They went away shortly after the shock type jerks were under control. So I'm not completely dismissive of Conversion/FND, but see the overall condition as closer to what happened with my knee. Long time ago, my knee was collapsing on me whenever I took a step. The MRI came out clean. After three weeks, the orthopedic told me there was nothing wrong with my knee, it may be neurological or psychological, but if I really want he's willing to do an exploritory scope. After some thought, I told him to scope it. The result was that I had a three inch tear in a layer that doesn't show on imaging and needed to be sewn up. He said he'd never seen it before, and it looked like that spot had just dried up and ripped. My body obviously has some strange neuro and/or rheumitology processes going on in it and I think the FND dx is her way of justifying not being able to explain what that process is. For my part, I'm going to keep searching for a dx. |
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"Thanks for this!" says: | SallyC (07-19-2014) |
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