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#1 | ||
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Member
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If you're on Baclofen, how do you deal with the tiredness? And does it go away? I increased my dose today so I'm at three 1/2 pills a day now and I'm SO tired all the time. I can't stop it because I really need spasticity help and I'm hoping the sleepiness will go away as I adjust to it. I can't drink caffeinated beverages because I have very bad bladder issues and caffeine+liquid=not good! I do have these green tea pills which I've been taking that help but I don't want to become dependent on them.
Does this go away? Any tricks to help fight it? |
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"Thanks for this!" says: | SallyC (11-17-2014) |
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#2 | |||
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Magnate
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Hi MSbelle,
It is possible to see a decrease in fatigue related to Baclofen when you reach the therapeutic level for you and your body adjusts. Unfortunately, each time you increase your dosage you will notice more fatigue ![]() Everyone reacts differently to medications. Some do fine on Baclofen and some end up changing to something different. Unfortunately, most symptom management medications list fatigue as a side effect ![]()
__________________
Dx RRMS 1984 |
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"Thanks for this!" says: | SallyC (11-17-2014) |
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#3 | |||
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Elder
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I only take it at night. The rest of the time, I just put up with the spasticity.
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~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~ ~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~ |
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"Thanks for this!" says: | SallyC (11-17-2014) |
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#4 | |||
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In Remembrance
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I never gave it a true test. As soon as I felt relief from the spasticity, I teetered down
off of it, because of the fatigue. I found that I could manage the milder spasticity without the Leorisell/baclofin (sp) and fatigue. ![]() ![]() didn't take it long term.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#5 | ||
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Member
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I'm beginning to realize that with MS medications, often the medicine is worse than the cure. Hopefully the side effect wears off over time because I can't live with the spasticity.
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#6 | |||
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Elder
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Baclofen makes my bladder issues 20x worse. Because I still work I cannot take it and function in the work place. I can't be in the restroom every hour.
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__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#7 | ||
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Member
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Oh no I wonder if that's why my bladder has been so bad
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#8 | |||
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In Remembrance
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__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#9 | |||
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Magnate
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Quote:
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__________________
Dx RRMS 1984 |
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#10 | ||
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Member
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Sooo update..
I talked to my nurse today about a few things, one being my worsening spasticity since starting Baclofen. I told her I cut out my afternoon dose, so now I'm down to 1/2 a pill in the a.m. and 1 full pill before bed. She told me to see benefits I'd have to keep working up to 1 full pill three times a day, despite my worsening spasticity... that the pill wont work at such a low dose. Sigh. Caffeine will need to be my friend for a while, then I'll work at weaning off that. She also said I should let her know if I want to start back up on Fampyra again and give it another go... seeing as 10 days into it I had my first and only very noticeable and profound relapse, I'm not in any way eager to start that again. Especially since it works on only 1/3 of people, and it's really expensive (though if it worked, we'd find a way to pay). |
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"Thanks for this!" says: | Snoopy (11-28-2014) |
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