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#1 | ||
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Junior Member
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I do know the feeling! Lol I'm finding I have pretty interesting memory issues these days. Actually I've been having several issues a of late but I'm too stubborn to give in. But that's just me I suppose lol
I work from home so that is a very good thing for me, although I have recently been put on mandatory overtime, and having to sit in one position for some 10 hours a day is rather hard on me. I've also noticed that at home I have become a wall walker so as to keep my balance. It's kinda funny actually to watch lol. I try to put on a good front on the outside. When in all honesty on the inside just the normal things a person has to do in life is very painful. I do not hide the fact that I have limitations to everything I do. This past year I am finding that when I go to a store I can no longer walk through the store but I have to be in a wheelchair. That was not something that was easy getting used to! But if it means it doesn't mean I'm hurting badly for the next couple of days, I'll do it lol. My ex husband and I remain friends and I suppose it's best for the kids to not having us fighting or anything. We haven't seen each other in a long time but are civil when we talk. And I suppose that's a good thing too. There are a lot of hurt feelings there but nothing that I can change so I just try to suck it up and put a smile on lol. These days I'm finding that harder and harder to do. This will be my first thanksgiving in 38 years that I have to spend alone. My kids will be with their dad and that new family, and my roommate will likely be with his family and loved ones. I don't have any family around here and have come to find that I really don't have any friends anymore either. I don't mean to feel bad for myself but it is the loneliest feeling. Anyway, thank you for letting me ramble and whine lol. It's good to get it out there sometimes. I hope you all have a wonderful Thanksgiving! |
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"Thanks for this!" says: |
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#2 | |||
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In Remembrance
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Awww poohy, that stinks, Pinky..
![]() To leave you without your kids on TG is unforgivable ...Booooo!! I'm going to be alone too, for most of TG. DD, also divorced, and my 5 Grands are going out for TG dinner, BUT, they are bringing a, full of everything, turkey dinner, back to me. If you lived closer, I'd have you over. What's one more dinner for her to deliver.. ![]() Have a big pizza delivered and eat the whole thing yourself.. ![]() Most kids would rather stay home for the pizza. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Pinky76 (11-26-2014) |
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#3 | ||
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Junior Member
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Lol i just figure I'll test my art skills and try and do a carving of a turkey out of peanut butter and call it good. This is just another thing I have to get used to I suppose. My sister told me I could come to her house, but that's in Michigan and I really can't drive it by myself. It's not terribly far, but too far for me alone. I'll figure it out. I'll have a breakdown when I'm alone and call it a day lol. At least I'll be given some rest with all the MS symptoms acting up.
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"Thanks for this!" says: | SallyC (11-26-2014) |
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#4 | |||
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Grand Magnate
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hi pinky,
i can relate to the gradual loss of abilities and having to make accommodations. the first i made was to use a cane. the next was to get a handicapped sticker for my car. that was earlier on in my MS journey. then i couldn't walk the grocery store anymore and have been using the carts ever since. all these little tweaks reminding me that i was giving up something. but i came to realize that these accommodations actually made my MS life easier and saved me energy to use on other parts of my day. i hope your dr knows of the problems you stated. maybe there is something to be done like PT or some home aids. you could call your local MS society to see if they offer any helpful classes; 1-800-FIGHT MS. you also might look into ergonomic seating in front of the computer. my brother used to talk to me about that. it might help. and, get up every hr for maybe 10 min's. sitting too long really hurts me. well, i'm raising my glass to you in a Thanksgiving toast for a better one next yr. take heart pinky. we're here for you.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#5 | ||
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Junior Member
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My doctor knows of some of my problems but I haven't seen him since March. I'm going to have to get in to see him though as some of my issues are getting worse. I've done PT and OT in the past when I had some pretty bad relapses. It helped some but I think I just learned how to do things my own way to make them work. I will check out some ergonomic seating for my desk. There has to be some relief out there I'm sure. As far as getting through the holidays I'm sure I'll figure that out too. All of that is still pretty new to me, so it'll just take some adjustment being alone. I'm getting good at it lol
I do wonder though, of anyone has trouble sleeping? I have pretty bad fatigue but I still have a hard time falling and staying asleep. I have a lot of nightmares so I understand why but I'm starting to wonder just how tired I have to be to get a good night sleep lol |
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"Thanks for this!" says: | SallyC (11-26-2014) |
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#6 | |||
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Elder
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Pinky I don't know wow many employess at your work place but I thought the American disabilities act took care of your employer making sure you had adequate seating.
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"Thanks for this!" says: | Pinky76 (11-27-2014) |
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#7 | ||
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Junior Member
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When an employee works in the place of business yes they do take care of providing the correct office equipment. (Or they are supposed to). However, I work from home so I have to provide my own desk and seating. They only give me my computers. I am very thankful for that because right now I use two computers for my job, and several of us are trying to talk my employer into giving us a third monitor. (It's no wonder my eyes are bad and I constantly have a headache LOL)
My neurologist wrote a letter stating that I can only work 40 hours a week and no more. I was told in order for this to go through I must open a FMLA claim and my neurologist has to submit it through there and try to get it approved. So, I will have to deal with sitting at a desk for 50 hours a week until it gets approved. I know that doesn't sound like any big deal... It's just sitting while I work. But wow does it hurt! My MS doesn't seem to like if I sit or stand for any length of time and it's making my spasticity much worse, as I'm sure many of you understand and deal with the same thing. All I keep telling myself is that I have to keep pushing through. Things are bound to get better eventually, right? |
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