It was such a shock when I heard my sister's voice a couple years ago, and my brother said, she could not feed herself anymore..all I could think about was all the drugs she believed so much in. They have not saved her. No, I will never bring this up to her or her family. Thanks for listening, guess I had to talk about this. My own daughter doesn't want to hear "negative" stuff from me, she deals with a lot of her own challenges and raising 2 children on her own.

Hi caroline2,

In written form you seem to be dealing with a lot of emotional pain, for yourself and for your sister

Is there someone who could read to her? Someone that could read a letter you may want to write? If so try, for her and you.

That is correct. I was diagnosed in 1985 at the age of 24. The first MS drug became available to the general MS population in 1993, by lottery. I did have a lottery number. Through the years I have chosen not to use the Disease Modifying Therapies/Disease Modifying Drugs (DMTs/DMDs aka MS drugs).

Some with MS do well on the DMTs and some continue to progress. Your Sister obviously tried to slow or stop the progression It sounds like she was following the recommendation of her Dr.

That's pretty stunning, no drugs...I guess I just have gauged any MS issues with the drugs and my sister's path.

As many have said, often the drugs are worse than the disease.

This kinda makes me think of RA as I've been on a health group where so many with RA took the drugs with mega side effects, they talked about, but for them they felt the side effects were better than the RA progression.

My neighbor was dx'd with RA about a year ago and did some of the drugs but is now off them as she's dealing with the side effects aftermath. Says she will NOW work with the RA with nutrition and her aleve. She's on a fixed income so I give her a supplement now and then to help her with fish oils and DGL stomach protector. She and I have mindsets of less drugs as possible...but with the RA recently she went on a few but is off them now. Hope that she will make it the way she is handling her condition.

I deal with bodywide OA and Fibro (so I've been told) and take none of the heavy duty drugs, ibuprofen and DGL for stomach protection, is my heavy drug. Then there is this mess from hip replacement, which has been lifechanging in a way I didn't expect. I manage and try not to worry about the down the road with advanced aging, 77 soon. My sis is 67.

My 1:30 ibuprofen is kicking in and feeling less pain. Doesn't last long enough....C

I've taken several of the DMD's over the years.

Copaxone was first......followed by Betaseron.......followed by LDN......followed by Tecfidera. None of the DMD's helped and some were horribly sickening. LDN was the only thing that didn't have debilitating side effects.

I'm done with Big Pharma. No more MS drugs for me.

I try to eat as healthy as I can on my income. Sometimes I just have to eat whatever I can afford.

Some people have good outcomes using diet as a main remedy for MS. I think just about anyone would benefit from a healthy diet.

Kitty, good to see so many doing well with LDN, I know there is a support group for LDN in general, I was on it years ago when I was trying it, but there could be an MS LDN group too, I'd bet there is. As I said, I told my sis about it when I was trying it back in early 2010, but she and hub didn't "hear" me. I sure have tried.

And yes, a clean quality diet is good for EVERYTHING and EVERY BODY. I'd love to see the drug tv ads gone, but something tells me it ain't gonna happen.

They're everywhere!! And if you listen to all the adverse side effects they are legally obligated to disclose you'd almost rather deal with whatever condition you already have versus adding new problems to the mix.

Big Pharma is banking on disabled folks trying anything and everything. They promise near miracles but only give you enough to keep you coming back.

No cure for MS or any other neurological condition will be found.....that would be financial suicide to the pharmaceutical companies.

Good thing there's computer geeks out there taking down big pharma! We're getting much closer to solving the cooling issues for computers that can do countless computations at once. Meaning it can easily compute a person's gemetics, diet, and environment as well as compute what changes will fix what ails them. We're getting so, so close to individualized medicine, where a simple prick of a finger or swab of the mouth will give the answers to what ails you and how to cure you.

Just a bit crappy that it's not here yet. Gotta wait for at least the next generation to come up and pray our school systems don't ruin it.

Amen!!!!

OT a bit, but speaking of "cures"..the closest I've gotten to a cure is with OPC's, my choice has been pycnogenol and grape seed extract and going on 20 yrs in Sept this year.

Prior to 1995, I was a slave to otc allergy/sinus drugs and allergist appts...never getting help, never. Giving them more time and money and never getting better.

That all ended in Sept 1995 when I got on Pycnogenol and within a couple weeks I tossed out the drugs, NEVER to buy any again nor see an allergy doc....TRUTH.

The Main Reason I got on Pycnogenol, we were told it "may" prevent cancer...I was 57 and that was MUSIC to my ears. But little did I know my allergy issues would be "cured"...

I've posted about OPC's on the vitamins/supps section here and talk about OPC's every chance.

Some of my "older" bridge friends are finally on grape seed ex and they are shocked at their improvement in overall health....one friend is 93 this year and she is NEVER sick...and more energy than most of us older gals. She's on grape seed ex about 5 yrs now.

NOW, I'd LOVE to see OPC ads on TV and billboards you name it, so many many people could be saved from so many health issues and the drugs.....Amen

Some have accused me of being invested in the OPC world of business, and my only investment is to help others find out about them and improve their lives. If only OPC's could have saved me from a hip replacement....talk about a bunch of side effects..

One Disclaimer: If a person takes pharma blood thinner, then can't take OPC's..one or the other...

Ok, I give. What is OPCs?